CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 2446
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09607 Brief Psychiatric Rating Scale (BPRS) - disorientation score

The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09592 Brief Psychiatric Rating Scale (BPRS) - emotional withdrawal score

The score of the participant's/subject's emotional withdrawal, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09606 Brief Psychiatric Rating Scale (BPRS) - excitement score

The score of the participant's/subject's excitement, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09597 Brief Psychiatric Rating Scale (BPRS) - grandiosity score

The score of the participant's/subject's grandiosity, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09594 Brief Psychiatric Rating Scale (BPRS) - guilt feeling score

The score of the participant's/subject's feelings of guilt, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09601 Brief Psychiatric Rating Scale (BPRS) - halluncinatory behavior score

The score of the participant's/subject's hallucinatory, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09599 Brief Psychiatric Rating Scale (BPRS) - hostility score

The score of the participant's/subject's hostility, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09596 Brief Psychiatric Rating Scale (BPRS) - mannerisms posturing score

The score of the participant's/subject's mannerisms and posturing, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09602 Brief Psychiatric Rating Scale (BPRS) - motor retardation score

The score of the participant's/subject's motor retardation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09590 Brief Psychiatric Rating Scale (BPRS) - somatic concern score

The score of the participant's/subject's somatic concern, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09600 Brief Psychiatric Rating Scale (BPRS) - suspiciousness score

The score of the participant's/subject's suspiciousness, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09595 Brief Psychiatric Rating Scale (BPRS) - tension score

The score of the participant's/subject's tension, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09603 Brief Psychiatric Rating Scale (BPRS) - uncooperativeness score

The score of the participant's/subject's uncooperativeness, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09604 Brief Psychiatric Rating Scale (BPRS) - unusual thought content score

The score of the participant's/subject's unusual thought content, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C08017 Case report number

Although not a data item, the case report number may be helpful for centers to track and enumerate the number of PD DBS surgeries performed

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C18027 Comment text

Provide any additional information that pertains to the question

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C59102 Data aggregate-level General Research Use appropriate indicator

Indicator of whether the aggregate-level data is appropriate for General Research Use

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C59093 Database of Genotypes and Phenotypes phenotype study accession number text

The free-text field to specify the study phenotype study (phs) accession number for the database of Genotypes and Phenotypes (dbGaP) study

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C59098 Database of Genotypes and Phenotypes study title text

The free-text field to specify the title of the of the database of Genotypes and Phenotypes (dbGaP) study

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08104 Day care attendance indicator

Indicator of whether the participant/subject attended day care outside of the home as a child

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C08106 Day care end date

Date participant/subject ended day care outside of home

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C08107 Day care hour per week value

Approximate hours per week the participant/subject attended day care as a child

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C08105 Day care start date

Date participant/subject first started day care outside of home

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C59088 Deep brain stimulation indication type

Type of indications for deep brain stimulation (DBS)

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59089 Deep brain stimulation indication type medication side effect other text

The free text field related to 'Deep brain stimulation indication type', specifying other medication side effects

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
Displaying 151 - 175 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.