CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 749
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20358 Pittsburgh Sleep Quality Index (PSQI) - Awaken bathroom use past month scale

The scale to which the subject had to get up to use the bathroom during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C20357 Pittsburgh Sleep Quality Index (PSQI) - Sleep efficiency scale

The sleep efficiency scale calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C20356 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute scale

The scaled duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C20355 Pittsburgh Sleep Quality Index (PSQI) - Feel hot past month scale

The scale to which the subject felt too hot during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C20354 Pittsburgh Sleep Quality Index (PSQI) - Cannot breathe comfortably past month scale

The scale to which the subject had trouble breathing comfortably during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C20353 Pittsburgh Sleep Quality Index (PSQI) - trouble sleep 30 minutes past month scale

The scale to which the participant had trouble getting to sleep within 30 minutes during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C19615 Genetic test name

The name of the genetic test used

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C19610 Genetic test result date

The date of reporting of the genetic test results

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C19607 Genetic test mitochondrial DNA variant mutation quantitative analysis heteroplasmy level type

Type of heteroplasmy level in quantitative analysis for mitochondrial DNA variant or mutation

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C19605 Genetic test mitochondrial DNA variant mutation quantitative analysis evaluation method type

Type of evaluation method in quantitative analysis for mitochondrial DNA variant or mutation

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C19600 Genetic test diagnostic laboratory name

Name of diagnostic laboratory for genetic testing

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C19599 Gene text

The free-text field to specify genes screened in the participant for the disease or disorder

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C19598 Genetic test tissue other text

The free-text field to specify the type of tissue tested for genetic test

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C19595 Genetic test karyotype tissue type

Type of tissue tested in the karyotype test

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C19592 Genetic test mitochondrial DNA genome deletion duplication analysis tissue type

Type of tissue tested in the mtDNA genome deletion/duplication analysis test

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C19590 Genetic test mitochondrial DNA panel tissue type

Type of tissue tested in the mtDNA panel test

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C19584 Genetic test performed year value

Value of the year the genetic test was performed

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C19529 Motor symptom parkinsonian initial type ambulatory axial difficulty abnormal posture gait other text

The free-text field related to 'Motor symptom parkinsonian initial type', specifying ambulatory/axial difficulties-other abnormality of posture or gait other text. Type(s) of initial motor symptoms of Parkinson's disease described by the participant/subject.

Supplemental Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C19516 Blood sample repository name

Name of repository to which the participant gave a blood sample

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C19247 Subject ID

Subject identification ID

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C19014 Gene detection method type other text

The free-text field related to 'Gene detection method type' specifying other text. The method used to detect the gene mutation or variant

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C18875 Gene targeted variant mutational analysis other text

The free-text field related to 'Gene targeted variant or mutational analysis type', specifying other text. Type of targeted variant or mutational analysis performed for the gene

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C18874 Gene variant mutation category other text

The free-text field related to 'Gene variant or mutation category', specifying other text. Category of the variant or mutation detected on the gene

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
Displaying 251 - 275 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.