CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 749
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20428 Beck Depression Inventory II (BDI-II) - Self-criticalness scale

Scale identifying level of self-criticalness, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C19529 Motor symptom parkinsonian initial type ambulatory axial difficulty abnormal posture gait other text

The free-text field related to 'Motor symptom parkinsonian initial type', specifying ambulatory/axial difficulties-other abnormality of posture or gait other text. Type(s) of initial motor symptoms of Parkinson's disease described by the participant/subject.

 Supplemental Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C20371 Pittsburgh Sleep Quality Index (PSQI) - Partner report leg twitch jerk past month scale

The scale to which the subject's partner reported leg twitching or jerking during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C17889 Gene missense nonsense variant point mutation location exon text

The free-text field about missense/nonsense variant or point mutation at the exon

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C20436 Beck Depression Inventory II (BDI-II) - Sleep pattern change scale

Scale identifying level of change in sleep pattern, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C10844 Gene type

The type of gene screened in the participant/subject for the disease or disorder

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C20379 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text

The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C18874 Gene variant mutation category other text

The free-text field related to 'Gene variant or mutation category', specifying other text. Category of the variant or mutation detected on the gene

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C09576 Brief Pain Inventory (BPI) - pain area indicator

On the diagram, shade in the areas where you feel pain. Put an X on the area that hurts the most, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Parkinson's Disease Parkinson's Disease
C12786 Allele identifier name

Name that identifies which allele the associated data describe

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C10168 Quantitative sudomotor axon reflex test (QSART) - resting skin temperature unit of measure

Unit resting skin temperature is measured in from quantitative sudomotor axon reflex test (QSART)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C19598 Genetic test tissue other text

The free-text field to specify the type of tissue tested for genetic test

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C09584 Brief Pain Inventory (BPI) - pain mood interference scale

Scale assessing how much the pain has interfered with mood, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Parkinson's Disease Parkinson's Disease
C12796 Gene targeted variant mutational analysis indicator

Indicator of whether variant or mutational analysis was targeted at a particular variant or mutation

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C10421 Sialorrhea Clinical Scale for PD (SCS-PD) - drool day score

How many times do you drool during the daytime? As part of SCS-PD questionnaire

 Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) False Parkinson's Disease Parkinson's Disease
C54898 Surgery procedure minute duration

Duration in minutes of surgery or procedure

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C59058 Imaging amyloid centiloid anatomic site other text

The free-text field related to 'Imaging amyloid centiloid anatomic site' specifying other text.

 Supplemental PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C59136 Stimulation brain parameter pulse width value

Value of the width of electric pulses (stimulation) on brain hemisphere

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C10175 FEF25-75 percentage value

Forced expiratory flow rate between 25 to 75% of FVC (Used to be known as maximal mid expiratory flow rate)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C08097 Influenza vaccine first receive age value

Age participant/subject received his/her first influenza vaccination

 Supplemental Infection History False Parkinson's Disease Parkinson's Disease
C07433 Patient Health Questionnaire (PHQ) - Tired little energy score

Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Parkinson's Disease Parkinson's Disease
C08022 Imaging magnetic resonance imaging findings result status

Results from MRI studies

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59145 Brain lead post implant interval unit of measure

Unit of measure for the interval post implantation of brain leads at which the stimulation and parameters and clinical motor outcomes were documented

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C10184 Thermoregulatory sweat test room temperature unit of measurement

Unit temperature is measured in for the Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
Displaying 201 - 225 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.