CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 676 - 700 of 749

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2171-C09352	C09352	Hamilton Anxiety Rating Scale (HAM-A) - cardiovascular symptom score	The score of the participant's/subject's cardiovascular symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental	Hamilton Anxiety Rating Scale (HAM-A)	False	Parkinson's Disease	Parkinson's Disease
F2953-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2955-C59169	C59169	Gene promoter affect exon deleted duplicated indicator	Indicator of whether known gene promoters were affected by exonic deletions/duplications	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59131	C59131	Stimulation brain parameter positive contact text	Text related to positive contact brain stimulation parameters	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10170	C10170	Quantitative sudomotor axon reflex test (QSART) - result type	Type of overall results of quantitative sudomotor axon reflex test (QSART)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2951-C08276	C08276	Imaging scan aborted reason	Reason the imaging was aborted	Supplemental	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2955-C59177	C59177	Research relate database of Genotypes and Phenotypes study indicator	Indicator whether the study is related to a pre-existing registered NCBI database of Genotypes and Phenotypes (dbGaP) study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59139	C59139	Optimal programming limit stimulation adverse effect indicator	Indicator related to whether optimal programming is limited by stimulation-induced adverse effects	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10178	C10178	Diffusion Capacity Uncorrected measurement	Diffusion Capacity Uncorrected (DLCO UNC) = Participant/subject is asked to take a deep breath of air containing known concentration of carbon monoxide and to hold it for 10 seconds. The terminal (alveolar air) portion of expiration is collected to measure	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2952-C59090	C59090	Deep brain stimulation indication type other text	The free-text field related to 'Deep brain stimulation indication type', specifying other text. Type of indications for deep brain stimulation (DBS)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3028-C07437	C07437	Patient Health Questionnaire (PHQ) - Concentration impairment score	Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Parkinson's Disease	Parkinson's Disease
F2952-C59148	C59148	Adverse event outcome status other text	The free-text field related to 'Adverse event outcome status', specifying other text. Final status of the participant/subject related to the adverse event	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10187	C10187	Videofluoroscopic swallowing study liquid type	Type of liquid used in the Videofluoroscopic Swallowing Study (VFSS)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2952-C59101	C59101	Functional neurosurgery target planning software type text	The free-text field to describe the type of functional neurosurgery target planning software used to determine the coordinates of the target (brain nucleus)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2944-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	Demographics	False	Parkinson's Disease	Parkinson's Disease
F0803-C09590	C09590	Brief Psychiatric Rating Scale (BPRS) - somatic concern score	The score of the participant's/subject's somatic concern, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F3043-C20375	C20375	Pittsburgh Sleep Quality Index (PSQI) - Total score	The total score, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2955-C17894	C17894	Gene missense nonsense variant point mutation location intron text	The free-text field about missense/nonsense variant or point mutation at the intron	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C08047	C08047	Medication anti-Parkinsonian reduced after surgery percent value	Percent anti-Parkinsonism medication(s) were reduced	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3041-C20440	C20440	Beck Depression Inventory II (BDI-II) - Tiredness fatigue scale	Scale identifying level of tiredness or fatigue, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2947-C08234	C08234	Drug or substance last illicit use date and time	Date (and time if applicable and known) of the participant's/subject's last use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C12782	C12782	Gene additional variants unknown significance indicator	Indicator of whether there are additional variants in other genes of unknown significance	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2945-C08080	C08080	Twin sibling indicator	Indicator of whether the participant/subject has a twin brother or sister	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F0803-C09598	C09598	Brief Psychiatric Rating Scale (BPRS) - depressive mood score	The score of the participant's/subject's depressive mood, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F3043-C20384	C20384	Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale	The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease

Displaying 676 - 700 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.