CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 626 - 650 of 749

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2951-C08258	C08258	Imaging radioligand type	Isotope-labeled bioactive compound (generic or common name) used in the imaging scan	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2950-C08241	C08241	Imaging field of view axis 1 measurement	Measurement of axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
F2170-C08506	C08506	36-item Short Form Health Survey (SF-36) - Health limited climbing several stairs score	Score of surveyee-reported limited climbing several flights of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
F3040-C10405	C10405	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night woken past month scale	Pre-specified scales for having woken at night in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F2951-C08266	C08266	Imaging post reconstruction filter type	Type of post reconstruction filter used to smooth image data	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2806-C09302	C09302	Apathy Scale (AS) - Interest scale	The scale related to subject's interests, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease
F2950-C10927	C10927	Imaging inversion time duration	Duration of the time period between the 180 degree inversion pulse and the 90 degree excitation pulse in an Inversion Recovery pulse sequence	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
F2170-C08514	C08514	36-item Short Form Health Survey (SF-36) - Less accomplished physical health indicator	Indicator for surveyee-reported less accomplishment as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
F2951-C18037	C18037	Imaging radioligand specific activity value indicator	Whether the specific activity value is known	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2955-C59178	C59178	Blood sample repository indicator	Indicator whether the participant provided a blood sample to a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2806-C09310	C09310	Apathy Scale (AS) - Energy scale	The scale related to the subject's energy levels, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease
F2950-C57934	C57934	Imaging multiband use indicator	Indicator of whether a multiband method is used in imaging acquisition	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
F2955-C59060	C59060	Diagnosis primary clinical parkinsonism type other text	The free-text field related to 'Diagnosis primary clinical parkinsonism type', specifying other text. Type of primary clinical parkinsonism diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2170-C08522	C08522	36-item Short Form Health Survey (SF-36) - Pain interfere work score	Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
F2950-C59036	C59036	Imaging scan initiation time	Time of scan initiation	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
F2955-C59080	C59080	Biological sample in repository specimen type other text	The free-text field related to 'Biological sample in repository specimen type', specifying other text. Type of biological sample or specimen collected and stored in a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2170-C08530	C08530	36-item Short Form Health Survey (SF-36) - Times happy score	Score of times being a happy person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
F2169-C08635	C08635	Risk Factor Questionnaire (RFQ) - longest occupation over 65 year text	Text describing the participant's/subject's longest held occupation from the age of 66+ years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F3029-C20533	C20533	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category	Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Parkinson's Disease	Parkinson's Disease
F2951-C59043	C59043	Imaging camera type	Type of imaging camera used	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2169-C08605	C08605	Risk Factor Questionnaire (RFQ) - current job second duty text	Text describing the second of four major duties or tasks at the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F2951-C59051	C59051	Imaging MRI acquire co-registration indicator	Indicator of whether MRI was acquired for co-registration with the imaging study being documented.	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2169-C08613	C08613	Risk Factor Questionnaire (RFQ) - longest occupation 25 year third duty text	Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F3040-C10412	C10412	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep watch read past month frequency	Pre-specified frequencies for falling asleep peacefully while watching TV or reading in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
F2169-C08621	C08621	Risk Factor Questionnaire (RFQ) - longest occupation 36 45 year first duty text	Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 36-45 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease

Displaying 626 - 650 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.