CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 759
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08002 Family history relative type biological sample identifier number

Identification (ID) number assigned to family member's biological sample in repository

Supplemental Family History Parkinson's Disease Parkinson's Disease
C12803 Gene variant mutation implications confirmed mRNA analysis indicator

Indicator of whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C02303 Adverse event outcome status

Final status of the participant/subject related to the adverse event

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59066 Twin sibling birth sex assigned type

Sex assigned at birth of participant's/subject's twin sibling

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C20361 Pittsburgh Sleep Quality Index (PSQI) - Partner report long pause breathe past month scale

The scale to which the subject's partner reported long pauses between breaths during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C08026 Functional neurosurgery target anatomic site

The anatomic site in the brain nucleus or group of neurons to be intervened for surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20426 Beck Depression Inventory II (BDI-II) - Punishment feeling scale

Scale identifying level of punishment feelings, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C08096 Influenza vaccine history indicator

Indicator of whether the participant/subject has ever received an influenza vaccination

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C10422 Sialorrhea Clinical Scale for PD (SCS-PD) - social saliva score

When you go out or on social occasions, does saliva accumulation bother you? As part of SCS-PD questionnaire

Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) Parkinson's Disease Parkinson's Disease
C09344 Hamilton Anxiety Rating Scale (HAM-A) - anxious mood score

The score of the participant's/subject's anxious mood, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C59160 Lead extender replacement reason

The reason the lead extender was replaced

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C54695 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale

Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health Parkinson's Disease Parkinson's Disease
C59112 Genetic study data general category type

Type of general category data expected for the genetics study

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59117 Brain lead insert count

Count of brain leads inserted

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09352 Hamilton Anxiety Rating Scale (HAM-A) - cardiovascular symptom score

The score of the participant's/subject's cardiovascular symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C59589 Anterior commissure posterior commissure target y coordinate value

Stereotactic y coordinate with respect to anterior and posterior commissure (brain nuclei)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59164 Genotype platform vendor text

The free-text field to specify the genotype platform vendor

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59126 Pulse generator battery type

Type of battery used in the pulse generator(s) inserted

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C59172 Gene pathogenic certainty status

Status related to pathogenic certainty for the gene screened in the participant/subject

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59134 Stimulation brain parameter amplitude unit of measure

Unit of measure for amplitude of electric impulses (stimulation) on brain hemisphere

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C10173 Forced expiratory volume second result value

Value of the amount of air, in liters, that can be blown in the first second in the Forced Expiratory Volume maneuver (FEV1)

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C19610 Genetic test result date

The date of reporting of the genetic test results

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C07431 Patient Health Questionnaire (PHQ) - Depressed score

Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Parkinson's Disease Parkinson's Disease
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.