CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2951-C08272	C08272	Imaging F-dopa binding ratio type	Type of F-dopa binding ratio with respect to the rest of the brain	Supplemental	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2952-C59138	C59138	Stimulation brain paradigm type other text	The free-text field related to 'Stimulation brain paradigm type', specifying other text. Type of brain stimulation paradigm	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10177	C10177	Slow vital capacity percent of predicted normal value	Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2955-C56038	C56038	Genetic test performed other text	The free-text field specifying the other genetic test that was performed	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59089	C59089	Deep brain stimulation indication type medication side effect other text	The free text field related to 'Deep brain stimulation indication type', specifying other medication side effects	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F0803-C09605	C09605	Brief Psychiatric Rating Scale (BPRS) - blunted affect score	The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F3028-C07436	C07436	Patient Health Questionnaire (PHQ) - Feeling failure score	Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Parkinson's Disease	Parkinson's Disease
F2952-C59147	C59147	Adverse event treatment specify text	The free-text field to specify the treatment required for the adverse event other than action taken with study intervention/ treatment	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10186	C10186	Videofluoroscopic swallowing study swallow effort number	Each swallow effort of the Videofluoroscopic Swallowing Study (VFSS) is numbered; first swallow effort is numbered 1, second swallow effort is numbered 2, etc	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2952-C59100	C59100	Functional neurosurgery target anatomic site multiple ipsilateral lead specify text	The free-text field to specify the anatomic site targets when multiple ipsilateral leads are used in functional neurosurgery procedure	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2171-C09345	C09345	Hamilton Anxiety Rating Scale (HAM-A) - fear score	The score of the participant's/subject's fears, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental	Hamilton Anxiety Rating Scale (HAM-A)	False	Parkinson's Disease	Parkinson's Disease
F2952-C59155	C59155	Pulse generator replacement manipulation count	Count of pulse generators replaced or manipulated	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59093	C59093	Database of Genotypes and Phenotypes phenotype study accession number text	The free-text field to specify the study phenotype study (phs) accession number for the database of Genotypes and Phenotypes (dbGaP) study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59110	C59110	Surgery intra-operative target verify lead placement MRI type	Type of magnetic resonance imaging (MRI) intra-operative target verification in relation to time of lead placement surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2171-C09353	C09353	Hamilton Anxiety Rating Scale (HAM-A) - respiratory symptom score	The score of the participant's/subject's respiratory symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental	Hamilton Anxiety Rating Scale (HAM-A)	False	Parkinson's Disease	Parkinson's Disease
F2945-C08111	C08111	Preschool hour per week value	Approximate hours per week the participant/subject attended preschool as a child	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F3043-C20382	C20382	Pittsburgh Sleep Quality Index (PSQI) - Sleep disturbance scale	The scale to which sleep disturbance was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2952-C18681	C18681	Functional neurosurgery target anatomic site other text	The free-text field related to 'Functional neurosurgery target anatomic site', specifying other text. The anatomic site in the brain nucleus or group of neurons to be intervened for surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3042-C09579	C09579	Brief Pain Inventory (BPI) - average pain rating scale	Scale indicating the rating of the average pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
F2948-C08001	C08001	Family history relative type biological sample in repository indicator	Indicator of whether the participant's family member has donated biological sample(s) to a repository	Supplemental	Family History	False	Parkinson's Disease	Parkinson's Disease
F2955-C12789	C12789	Gene deletions duplications limits clearly defined indicator	Indicator of whether the limits of deletions and duplications are defined	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2945-C59065	C59065	Older full biological sibling count	Count of older full biological siblings the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2955-C19605	C19605	Genetic test mitochondrial DNA variant mutation quantitative analysis evaluation method type	Type of evaluation method in quantitative analysis for mitochondrial DNA variant or mutation	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C18763	C18763	Surgical complication post-operative type other text	The free-text field related to 'Surgical complications post-operative type', specifying other text. Type of post-operative surgical complications experienced by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3042-C09587	C09587	Brief Pain Inventory (BPI) - pain relations interference scale	Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.