CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 326 - 350 of 749
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08034 Surgery head position status

Status of the participant's/subject's head position with respect to the horizontal plane during surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20429 Beck Depression Inventory II (BDI-II) - Suicidal thought wish scale

Scale identifying level of suicidal thoughts or wishes, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C08233 Drug or substance first illicit use date and time

Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C10417 Sialorrhea Clinical Scale for PD (SCS-PD) - sleep saliva score

When you are asleep, how much saliva is there in your mouth? As part of SCS-PD questionnaire

Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) Parkinson's Disease Parkinson's Disease
C08079 Full biological brothers count

Count of full biological brothers the participant/subject has

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C20372 Pittsburgh Sleep Quality Index (PSQI) - Sleep quality past month scale

Rating of overall sleep quality past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C17890 Allele number one missense nonsense variant or point mutation subclass information type

Type of missense/nonsense variant or point mutation subclass information, first allele number one

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08042 Surgery externalization use indicator

Indicator of whether a procedure of exposing the implanted electrodes out of the brain for stimulation purposes was performed

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20437 Beck Depression Inventory II (BDI-II) - Irritability scale

Scale identifying level of irritability, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C17688 Non-prescribed controlled psychoactive drug substance opioid text

The text specifying the drugs within the 'Opioids/Narcotics: heroin, opium, morphine, methadone, codeine, Darvon, Percodan, Oxycontin, Dilaudid, Demerol/meperidine,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C10845 Gene screened indicator

Indicator whether the participant/subject was screened for the specific gene mutation (e.g., Superoxide dismutase 1, Fused in sarcoma, TAR DNA binding protein) commonly seen in the disease or disorder

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C09592 Brief Psychiatric Rating Scale (BPRS) - emotional withdrawal score

The score of the participant's/subject's emotional withdrawal, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C08109 Preschool start date

Date participant/subject first started preschool

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59584 Motor fluctuation month duration

Duration in months of motor fluctuations at the time of surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59119 Genetic study data genotype category type

Type of genotype category data expected for the genetics study

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59121 Brain lead cylindrical type other text

The free-text field related to 'Brain lead type', specifying the other type of cylindrical lead inserted

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C59167 Genotype platform description text

The free-text field describing the genotype platform

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59129 Stimulation brain parameter contact configuration text

Text related to contact configuration brain stimulation parameters

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C08216 Medication prior or concomitant total daily as needed dose measurement

Total daily dose or PRN (as needed) dose of the non-Parkinson's disease (PD) medication taken by the participant/subject

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C08271 Imaging quantitative outcome type

Primary quantitative outcome to describe tracer distribution and uptake for the imaging data analysis

Supplemental PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59137 Stimulation brain paradigm type

Type of brain stimulation paradigm

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C10176 Peak Expiratory Flow Rate Percentage value

Peak expiratory flow rate (PEFR)

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C59088 Deep brain stimulation indication type

Type of indications for deep brain stimulation (DBS)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C07435 Patient Health Questionnaire (PHQ) - Abnormal diet score

Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Parkinson's Disease Parkinson's Disease
Displaying 326 - 350 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.