CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 759
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54693 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale

Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health

 Supplemental PROMIS Item Bank v1.2 - Global Health True Parkinson's Disease Parkinson's Disease
C59102 Data aggregate-level General Research Use appropriate indicator

Indicator of whether the aggregate-level data is appropriate for General Research Use

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C59113 Microelectrode record type

Type of microelectrode recording done for intra-operative target verification

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09345 Hamilton Anxiety Rating Scale (HAM-A) - fear score

The score of the participant's/subject's fears, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Parkinson's Disease Parkinson's Disease
C08051 Stimulation parameter brain hemisphere type

Side of the brain targeted for stimulation

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C20441 Beck Depression Inventory II (BDI-II) - Sex interest loss scale

Scale identifying level of loss of interest in sex, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C08235 Drug or substance illicit use frequency

The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C12783 Variant mutational analysis results available indicator

Indicator of whether the variant or mutational analysis results are available on this participant

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08081 Twin sibling type

Type of twin the participant/subject has

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C09599 Brief Psychiatric Rating Scale (BPRS) - hostility score

The score of the participant's/subject's hostility, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C20385 Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale

The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C19590 Genetic test mitochondrial DNA panel tissue type

Type of tissue tested in the mtDNA panel test

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C18734 Lead reposition reason other text

The free-text field related to 'Lead reposition reason', specifying other text. Reason the lead was repositioned in the participant/subject

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09581 Brief Pain Inventory (BPI) - treatment received text

Text of treatment/medication subject receives for the pain, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Parkinson's Disease Parkinson's Disease
C17690 Non-prescribed controlled psychoactive drug substance hallucinogen text

The text specifying the drugs within the 'Hallucinogens: ecstasy/MDMA, LSD, mescaline/peyote, psilocybin/mushrooms, PCP/phencylidine/angel dust, MDA/STP/DOM,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C12791 Gene exon last deleted duplicated name

Name of the exon last deleted or duplicated

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08111 Preschool hour per week value

Approximate hours per week the participant/subject attended preschool as a child

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C09607 Brief Psychiatric Rating Scale (BPRS) - disorientation score

The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C59085 Parkinsons disease motor sign year duration

Duration in years of motor signs related to Parkinson's disease at the time of surgery

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09589 Brief Pain Inventory (BPI) - pain enjoyment interference scale

Scale assessing how much the pain has interfered with enjoyment of life, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Parkinson's Disease Parkinson's Disease
C08001 Family history relative type biological sample in repository indicator

Indicator of whether the participant's family member has donated biological sample(s) to a repository

 Supplemental Family History False Parkinson's Disease Parkinson's Disease
C12802 Gene variant mutation mRNA analysis performed indicator

Indicator of whether messenger ribonucleic acid (mRNA) analysis was performed

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C02302 Adverse event other action taken type

Type of action taken due to adverse event other than action taken with study intervention/ treatment

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59065 Older full biological sibling count

Count of older full biological siblings the participant/subject has

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C17402 Site name

The name of the site for the study

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
Displaying 301 - 325 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.