CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2955-C59172	C59172	Gene pathogenic certainty status	Status related to pathogenic certainty for the gene screened in the participant/subject	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59134	C59134	Stimulation brain parameter amplitude unit of measure	Unit of measure for amplitude of electric impulses (stimulation) on brain hemisphere	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10173	C10173	Forced expiratory volume second result value	Value of the amount of air, in liters, that can be blown in the first second in the Forced Expiratory Volume maneuver (FEV1)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2955-C19610	C19610	Genetic test result date	The date of reporting of the genetic test results	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F3028-C07431	C07431	Patient Health Questionnaire (PHQ) - Depressed score	Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Parkinson's Disease	Parkinson's Disease
F2952-C59143	C59143	Unified Parkinsons Disease Rating Scale part three on DBS on medication score	The score related to part three of the Unified Parkinson's Disease Rating Scale (UPDRS) when the participant/subject is on DBS and on medications	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10182	C10182	Thermoregulatory sweat test baseline room temperature value	Baseline (starting) temperature of the room the participant/subject is placed in for Thermoregulatory Sweat Test (TST)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2952-C59095	C59095	L-Dopa pre-operative challenge off levodopa duration	Duration in hours the participant/subject was off of levodopa as part of the pre-operative L-Dopa challenge	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2948-C59029	C59029	Family history relative type neurological disorder not parkinsonian code other text	The free-text field related to 'Family history relative type neurological disorder not parkinsonian code', specifying other text. Code for neurological disorder(s) other than Parkinson's Disease or Parkinsonism experienced by the family member or ancestor, for the specified relative type	Supplemental	Family History	False	Parkinson's Disease	Parkinson's Disease
F3028-C07440	C07440	Patient Health Questionnaire - (PHQ) - Depression questionnaire total score	Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Parkinson's Disease	Parkinson's Disease
F2952-C59151	C59151	Brain lead remove count	Count of brain leads removed	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C18769	C18769	Thermoregulatory sweat test sweat chemical other text	The free-text field related to 'Thermoregulatory sweat test sweat chemical type' specifying other text. Type of chemical used for Thermoregulatory Sweat Test (TST) that shows a significant color change when mingled with sweat	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2952-C59106	C59106	Surgery head fixation status	Status of the participant's/subject's head fixation to the operating room table during surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59160	C59160	Lead extender replacement reason	The reason the lead extender was replaced	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3056-C54695	C54695	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale	Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	Parkinson's Disease	Parkinson's Disease
F2955-C59112	C59112	Genetic study data general category type	Type of general category data expected for the genetics study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F3043-C20378	C20378	Pittsburgh Sleep Quality Index (PSQI) - Actual sleep past month hour scale	The scaled duration (in hours) of actual sleep per night in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2955-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C08065	C08065	Surgical complication category	Category of the surgical complication experienced by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3042-C09575	C09575	Brief Pain Inventory (BPI) - other pain indicator	Indicates if the subject had pain other than everyday kinds of pain, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
F2947-C17684	C17684	Non-prescribed controlled psychoactive drug substance stimulant cocaine text	The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C12785	C12785	Gene variant mutation detected result type	Type of gene variant or mutation detected	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2945-C08105	C08105	Day care start date	Date participant/subject first started day care outside of home	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F0803-C09601	C09601	Brief Psychiatric Rating Scale (BPRS) - halluncinatory behavior score	The score of the participant's/subject's hallucinatory, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F3048-C10167	C10167	Quantitative sudomotor axon reflex test (QSART) - resting skin temperature measurement	Measurement of resting skin temperature at a "normal" state from quantitative sudomotor axon reflex test (QSART)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.