CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1037-C12400	C12400	Respiratory oxygen administration method name	Name of method of administration of supplemental oxygen used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12401	C12401	Respiratory oxygen flow rate	The flow rate value of supplemental oxygen	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12402	C12402	Respiratory oxygen use frequency	Frequency of use of supplemental oxygen	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12403	C12403	Respiratory oxygen use schedule type	Type of schedule of supplemental oxygen use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12404	C12404	Respiratory oxygen use schedule daily hours value	Value of the number of hours of supplemental oxygen use per day	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12405	C12405	Respiratory other therapies description text	Text describing other relevant therapies for the participant's/subject's respiration system	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C17880	C17880	Respiratory support ventilation device other model name	Name of other support ventilation device used by the participant/subject	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C17881	C17881	Respiratory support ventilation mode negative pressure text	Text specifying the negative pressure support ventilation used by the support ventilation device	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18835	C18835	Respiratory device other text	The free-text field related to 'Respiratory device type' specifying other text. Type of airway clearance or secretion mobilization device(s) used by the participant/subject	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18836	C18836	Respiratory mechanical in-exsufflator device use other text	The free-text field related to 'Respiratory mechanical in-exsufflator device use frequency' specifying other text. Frequency of use of the mechanical in-exsufflator by the participant/subject	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18837	C18837	Respiratory manual cough assist use other text	The free-text field related to 'Respiratory manual cough assist use frequency' specifying other text. Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18838	C18838	Respiratory manual percussion use other text	The free-text field related to 'Respiratory manual percussion use frequency' specifying other text. Frequency of use of manual percussion therapy	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18839	C18839	Respiratory postural drainage use other text	The free-text field related to 'Respiratory postural drainage use frequency' specifying other text. Frequency of postural drainage use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18840	C18840	Respiratory lung volume recruitment use other text	The free-text field related to 'Respiratory lung volume recruitment use frequency' specifying other text. Frequency of lung volume recruitment use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18841	C18841	Respiratory high frequency chest wall oscillation system vest other text	The free-text field related to 'Respiratory high frequency chest wall oscillation system vest type' specifying other text. Type of vest used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18842	C18842	Respiratory high frequency chest wall oscillation system use other text	The free-text field related to 'Respiratory high frequency chest wall oscillation system use frequency' specifying other text. Frequency of use of the high frequency chest wall oscillation system	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18843	C18843	Respiratory intrapulmonary percussive ventilation or MetaNeb other text	The free-text field related to 'Respiratory intrapulmonary percussive ventilation or MetaNeb frequency' specifying other text. Frequency of intrapulmonary percussive ventilation or MetaNeb use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18844	C18844	Respiratory medication nebulized other text	The free-text field related to 'Respiratory medication nebulized type' specifying other text. Type of the medication(s) nebulized	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18845	C18845	Respiratory intrapulmonary percussive ventilation cup liquid other text	The free-text field related to 'Respiratory intrapulmonary percussive ventilation cup liquid type' specifying other text. Type of liquid in the intrapulmonary percussive ventilation cup	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18846	C18846	Respiratory other airway clearance method use other text	The free-text field related to 'Respiratory other airway clearance method use frequency' specifying other text. Frequency of use of other airway clearance methods	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18847	C18847	Respiratory support device other text	the free-text field related to 'Respiratory support device type' specifying other text. Type of respiratory support or assisted ventilation device used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18848	C18848	Respiratory support positive pressure device delivery method other text	The free-text field related to 'Respiratory support positive pressure device delivery method type' specifying other text. Type of non-invasive, positive pressure delivery method supported by the device	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18849	C18849	Respiratory support negative pressure device delivery method other text	The free-text field related to 'Respiratory support negative pressure device delivery method type' specifying other text. Type of non-invasive, negative pressure delivery method supported by the device	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18850	C18850	Respiratory tracheostomy tube timing other text	The free-text field related to 'Respiratory tracheostomy tube timing type' specifying other text. Type of inflation/deflation timing settings for cuffed tubes	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18851	C18851	Respiratory support ventilation mode other text	The free-text field related to 'Respiratory support ventilation mode type' specifying other text. Type of mode of ventilation for the support ventilation device used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.