CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1062-C12767	C12767	Electrophysiology short post-exercise compound muscle action potential time	The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the short exercise test	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12768	C12768	Electrophysiology short post-exercise compound muscle action potential measurement	The compound muscle action potential (CMAP) values measured at the post-exercise intervals	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12769	C12769	Electrophysiology long pre-exercise compound muscle action potential time	The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the long exercise test	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12770	C12770	Electrophysiology long pre-exercise compound muscle action potential measurement	Compound muscle action potential (CMAP) measurement recorded pre- long exercise	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12771	C12771	Electrophysiology long exercise test post-exercise compound muscle action potential time	The time intervals used to measure compound muscle action potential (CMAP) during pre-exercise for the long exercise test	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12772	C12772	Electrophysiology long exercise test post-exercise compound muscle action potential measurement	Compound muscle action potential (CMAP) measurement recorded post- long exercise	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C17969	C17969	Electrophysiology sensory nerve segment name	The name of the segment used in sensory nerve conduction studies	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C18808	C18808	Electrophysiology motor unit number estimation method used other text	The free-text field related to 'Electrophysiology motor unit number estimation method used type' specifying other text. Type of method or technique used for MUNE (motor unit number estimation)	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C18809	C18809	Electrophysiology motor unit number estimation nerve other text	The free-text field related to 'Electrophysiology motor unit number estimation nerve type' specifying other text. Type of nerve where an electrical signal is measured with the MUNE (motor unit number estimation) technique	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C18871	C18871	Needle electromyography spontaneous activity other text	The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C05105	C05105	Surgical or therapeutic procedure end date and time	Date on which the surgical or therapeutic procedure ended	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C05106	C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C08018	C08018	Surgery age value	Age of the participant/subject at the time of the selected surgical procedure	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C08020	C08020	Surgery reason indication type	Reason participant/subject is in need of surgery	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C12671	C12671	Surgery lifetime total count	Total number of surgeries the participant/subject has undergone in his/her lifetime	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C12672	C12672	Surgical or therapeutic procedure ventilated indicator	Whether the participant/subject was ventilated during the surgical or therapeutic procedure	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C18759	C18759	Surgery reason indication other text	The free-text field related to 'Surgery reason indication type' specifying other text. Reason participant/subject is in need of surgery	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C21668	C21668	ICD-10-CM code	Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C21669	C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1089-C04800	C04800	Death cause text	Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate	Supplemental	Death Report	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1089-C04802	C04802	Death date and time	Date (and time, if known) of participant's death	Supplemental	Death Report	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1089-C12610	C12610	Death location type	Type of location where the participant/subject died	Supplemental	Death Report	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1089-C18862	C18862	Death location other text	The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died	Supplemental	Death Report	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1089-C21665	C21665	Death cause ICD-10-CM code	ICD-10-CM code that describes the cause of participant's death	Supplemental	Death Report	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1090-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Core	Medical History of NMD	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.