CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1060-C12896	C12896	Echocardiogram left ventricle end diastolic volume measurement	Measurement of imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1999-C12294	C12294	Laboratory pathology normal range	Range of intraepidermal nerve fiber density that is considered normal at the pathology laboratory examining the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1046-C12788	C12788	Gene exon copy number tested indicator	Indicator of whether the copy number was directly tested for all exons	Supplemental	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C12494	C12494	Imaging pons abnormal indicator	Indicator of whether the pons appears normal or abnormal in the image studies	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C21669	C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C10726	C10726	Echocardiogram left interventricular septal thickness end diastole measurement	Measurement of left ventricular end - diastolic septal thickness (IVSTd) obtained by echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12323	C12323	Respiratory mechanical in-exsufflator exhale pressure value	Value of the exhale pressure setting for the mechanical in-exsufflator used by the participant/subject	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1039-C12198	C12198	Gastrointestinal therapy received indicator	Indicator of whether the participant/subject is currently receiving any gastrointestinal (GI) therapies	Supplemental	Gastrointestinal Therapies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12744	C12744	Electrophysiology neuromuscular jitter mean consecutive difference abnormal count	Count of pairs/endplates with abnormal mean consecutive difference (MCD) recorded for the neuromuscular jitter study being described	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C10570	C10570	Imaging contrast agent used indicator	Indicator of whether an imaging contrast agent was used for the scan	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18839	C18839	Respiratory postural drainage use other text	The free-text field related to 'Respiratory postural drainage use frequency' specifying other text. Frequency of postural drainage use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12703	C12703	Electrophysiology sensory nerve segment length measurement	The sensory nerve segment length measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1050-C12227	C12227	Postmortem interval for autopsy specimen value	Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C10577	C10577	Imaging signal averages number	Number of signal acquisitions averaged in imaging acquisition	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12370	C12370	Respiratory support device type	Type of respiratory support or assisted ventilation device used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1992-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests and Tracking	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12755	C12755	Electrophysiology Valsalva ratio	The Valsalva ratio measured during autonomic function testing	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1059-C10876	C10876	Holter exam mean heart rate	Mean heart rate measured during the Holter examination	Supplemental	Holter Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C17900	C17900	Age presentation year value	Age (in years) of participant/subject at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1056-C12842	C12842	Cardiac MRI ventricle end diastolic volume index measurement	Measurement of the selected ventricle's end diastolic volume divided by the participant's body surface area in square meters	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.