CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1106
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12264 Biopsy and autopsy abnormal cell name

List of abnormal cell types found in biopsy

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C54235 Echocardiogram right ventricular posterior wall thickness end diastole measurement

Measurement of right ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10758 ECG WPW syndrome status

Status of whether ventricular preexcitation / Wolff-Parkinson-White syndrome (WPW) is present or absent on the electrocardiogram (EKG) being reported

 Supplemental Electrocardiogram (ECG) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18720 Imaging visual analysis location performed type other text

The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12193 Dual X-ray absorptiometry appendicular lean soft tissue value

The amount of appendicular lean soft tissue (ALST) mass for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12872 Echocardiogram mitral valve stenosis degree status

Status of the degree of mitral valve stenosis as assessed by echocardiography

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17883 Gastrointestinal therapy water flush status

The status of whether water was used to flush the participant/subject's feeding tube, if applicable

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12481 Imaging cortex lissencephaly (LIS type 1) indicator

Indicator of whether cortex lissencephaly is found within the image studies

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17794 Imaging diffusion second b value

Value, in square millimeters per second, of the second b-value used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12461 Polysomnography heart rate measurement grade

Grade of the heart rate (HR) measurements being reported

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12414 Pulmonary blood gas pH value

The numeric value of the blood gas pH measurement

 Supplemental Measures of Gas Exchange False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12272 Western Blot result

Result of the assay(s) performed

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10782 Electrophysiology motor unit number estimation method used type

Type of method or technique used for MUNE (motor unit number estimation)

 Supplemental Electrophysiology False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12831 ECG atrioventricular block first degree status

Status of first degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18860 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site other text

The free-text field related to 'Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site', specifying other text. Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12515 Dual X-ray absorptiometry distal forearm Z score

The Z score the for dual X-ray absorptiometry (DEXA) of the distal forearm

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12891 Echocardiogram right ventricle function status

Status of right ventricle function on the echocardiogram

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12289 Tissue specimen section quantify type

Type of quantification used in evaluating the sections taken from the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12489 Imaging subcortical cysts site type

The anatomical site(s) of the subcortical cysts

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18656 Imaging diffusion fifth b value

Value, in square millimeters per second, of the fifth b-value used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12422 Pulmonary gas exchange end tidal transcutaneous average carbon dioxide value

The average value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check

 Supplemental Measures of Gas Exchange False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12429 Polysomnography sleep latency duration

Duration required by the participant/subject to transition from full wakefulness to sleep

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18776 ECG atrial arrhythmia type other text

The free-text field related to 'ECG atrial arrhythmia type', specifying other text. Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported

 Supplemental Electrocardiogram (ECG) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 51 - 75 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.