CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 326 - 350 of 1106
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12204 Gastrointestinal therapy fundoplication age value

Value of the participant/subject's age at which s/he had fundoplication surgery

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10583 Imaging base resolution value

Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI)

 Supplemental Diffusion Tensor Imaging (DTI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12439 Polysomnography blood oxygen saturation distribution percent value

The value of the blood oxygen saturation (SpO2) percentage for which sleep distribution results are being reported

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12249 Biopsy and Autopsy histochemical stains diagnostic abnormalities present type

The diagnostic abnormalities present on the histochenmical stains for the participant's/subject's tissue

 Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12179 Dual X-ray absorptiometry hip Z score

Dual X-ray absorptiometry (DEXA) Hip Z score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12213 Gastrointestinal therapy continuous feed start time

Time of day that the participant/subject's continuous feeding is normally begun

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12447 Polysomnography blood oxygen saturation drop hour awake count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during time awake

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18850 Respiratory tracheostomy tube timing other text

The free-text field related to 'Respiratory tracheostomy tube timing type' specifying other text. Type of inflation/deflation timing settings for cuffed tubes

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12306 Ulna length measurement

The length of the ulna of the participant/subject

 Supplemental Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12258 Biopsy and autopsy central cores type

The composition of the central cores

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12604 APGAR one minute score

Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12187 Dual X-ray absorptiometry distal femur T score

Dual X-ray absorptiometry (DEXA) distal femur T score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12223 Gastrointestinal therapy other oral intake estimate caloric value

Value of the subject/participant's caloric intake received through other oral intake

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12475 Imaging magnetic resonance imaging T1 T2 sequence name

The name of the T1 or T2 sequences used for Magnetic Resonance Imaging (MRI)

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12455 Polysomnography transcutaneous carbon dioxide measurement grade

Grade of the transcutaneous CO2 (TcCO2) measurements being reported

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12408 Pulmonary gas exchange assessment performed location

The location where the gas exchange assessment was performed

 Supplemental Measures of Gas Exchange False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12315 Pulmonary function forced vital capacity leak indicator

Whether or not there was a leak during exhalation in any trial for forced vital capacity (FVC)

 Supplemental-Highly Recommended Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12825 ECG pace rhythm type

Type of paced rhythm, if any, apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18854 Imaging other incidental finding other text

The free-text field related to 'Imaging other incidental finding type' specifying other text. The type of other incidental findings found within the image studies

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12195 Dual X-ray absorptiometry left arm lean value

Left arm lean muscle mass for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17885 Gastrointestinal therapy other feed tube text

Text identification of unlisted tube type through which the participant/subject receives therapeutic tube feedings

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12483 Imaging cortex-polymicrogyria indicator

Indicator of whether a developmental malformation of the human brain characterized by an excessive number of small convolutions (gyri) on the surface of the brain is present

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12463 Polysomnography heart rate REM sleep value

Value, in beats per minute, of the selected heart rate (HR) measurement during rapid eye movement (REM) sleep

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12416 Pulmonary blood gas partial pressure oxygen value

The numeric value of the blood gas partial pressure of oxygen (P02) in the blood

 Supplemental Measures of Gas Exchange False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12833 ECG atrioventricular block third degree complete status

Status of third degree or complete atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 326 - 350 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.