CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1106
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12536 Imaging dimension type

Type of imaging dimension used

 Supplemental Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12355 Respiratory intrapulmonary percussive ventilation or MetaNeb daily detail type

Frequency of use of the intrapulmonary percussive ventilation or MetaNeb device on a daily basis

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08020 Surgery reason indication type

Reason participant/subject is in need of surgery

 Supplemental Surgical History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

 Supplemental Demographics False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18880 Cardiovascular Holter exam atrial dysrhythmia type other text

The free-text field related to 'Cardiovascular Holter exam atrial dysrhythmia type', specifying other text. Type of atrial dysrhythmia detected during the Holter examination

 Supplemental Holter Examination False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12737 Needle electromyography interference pattern analysis technique name

The interference pattern technique used for analysis measure during needle electromyography

 Supplemental Electrophysiology False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17948 Scanner magnetic field other strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported, if unlisted

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12517 Fatty replacement severity status

Severity of the Fatty replacement muscle diagnostic abnormalities

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12405 Respiratory other therapies description text

Text describing other relevant therapies for the participant's/subject's respiration system

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17925 Imaging contrast agent dose

Dosage of the contrast agent used

 Supplemental Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12696 Electrophysiology motor nerve segment name

The name of the segment used for the motor nerve conduction study

 Supplemental Electrophysiology False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

 Supplemental Fat Aspirate Tissue Specimens False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12363 Respiratory airway clearance medication category

Category or class of airway clearance medication used by the participant/subject

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

 Supplemental Social Status False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12745 Electrophysiology neuromuscular jitter study blocking count

Count of pairs/endplates with blocking recorded for the neuromuscular jitter study being described

 Supplemental Electrophysiology False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12455 Polysomnography transcutaneous carbon dioxide measurement grade

Grade of the transcutaneous CO2 (TcCO2) measurements being reported

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12245 Symptom presentation type

Symptoms participant/ subject shows at presentation

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12906 Echocardiogram left ventricle non-compaction status

Status of non-compaction in the left ventricle on the echocardiogram

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12504 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site

Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12612 Initial symptom age value

The age at which the participant/subject first noted a neuromuscular symptom

 Supplemental Medical History of NMD False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12176 Dual energy X-ray absorptiometry participant age value

Age of the participant/subject when the Dual X-ray absorptiometry (DEXA) was done

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10742 Echocardiogram mitral valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12209 Gastrointestinal therapy feed schedule table number

Number of the table used to describe the participant/subject's feeding schedule

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 176 - 200 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.