CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1051 - 1075 of 1106

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1046-C18874	C18874	Gene variant mutation category other text	The free-text field related to 'Gene variant or mutation category', specifying other text. Category of the variant or mutation detected on the gene	Supplemental	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1032-C18684	C18684	Health insurance other text	The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12353	C12353	Respiratory intrapulmonary percussive ventilation or MetaNeb type	Type of intrapulmonary percussive ventilation or MetaNeb device used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1020-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Hand Held Dynamometry	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C05106	C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1059-C17960	C17960	Cardiovascular Holter exam tachycardia episode total count	Count of the total number of tachycardia episodes during the Holter examination	Supplemental	Holter Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1989-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12735	C12735	Needle electromyography motor unit action potential recruitment type	The recruitment of the motor unit action potential measure during needle electromyography	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C08236	C08236	Imaging scanner software name	Name of the scanner software that runs the imaging camera	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C17945	C17945	Spectroscopy sequence parameter PRESS asymmetry TE2 value	Value, in ms, of echo time (TE) 2 for an asymmetric PRESS sequence if used in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12275	C12275	Biopsy and autopsy absent immunoreactivity assay name	Absent immunoreactivity	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12403	C12403	Respiratory oxygen use schedule type	Type of schedule of supplemental oxygen use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C17798	C17798	Imaging contrast agent name	Name of imaging contrast agent used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1048-C12232	C12232	Laboratory director name	Name of laboratory director where assessment was performed	Supplemental	Fat Aspirate Tissue Specimens	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1033-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant is ongoing	Supplemental	Medical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12361	C12361	Respiratory other airway clearance method use daily freq	Frequency of use of other airway clearance method on a daily basis	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1018-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Exploratory	Grip Strength	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1018-C10171	C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Exploratory	Grip Strength	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1018-C10851	C10851	Grip strength test indicator	Indicator whether the grip strength testing was done	Exploratory	Grip Strength	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1018-C10852	C10852	Grip strength test performed date and time	Date (and time, if applicable and known) that grip strength testing was done	Exploratory	Grip Strength	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1018-C10854	C10854	Grip device width setting value	Value of the width setting on the grip device used to test the participant/subject's grip strength	Exploratory	Grip Strength	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1989-C11131	C11131	Body mass index value	Value of the participant's body mass index, calculated from height and weight	Exploratory	Vital Signs	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1018-C10855	C10855	Grip strength maximum measurement	Measurement of the maximum grip strength attained in the trial being recorded	Exploratory	Grip Strength	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1018-C10856	C10856	Grip strength unit of measure	Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded	Exploratory	Grip Strength	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

Displaying 1051 - 1075 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.