CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 1106
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12806 Gene protein variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation

 Supplemental Mutation Analysis False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

 Supplemental Social Status False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12340 Respiratory lung volume recruitment daily frequency

Frequency of daily use of the lung volume recruitment

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

 Supplemental Physical Examination False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12765 Electrophysiology short pre-exercise compound muscle action potential time

The time intervals used to measure compound muscle action potential (CMAP) during pre-exercise

 Supplemental Electrophysiology False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12933 Cardiovascular Holter exam ventricular contraction count type

Type of ventricular contraction for which the total number of occurrences is recorded

 Supplemental Holter Examination False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01522 Height measurement

Measurement of participant's height

 Supplemental Vital Signs False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12852 Cardiac MRI atrium area measurement

Measurement of the area of the selected atrium as obtained by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12722 Electrophysiology repetitive nerve high frequency

Value, in Hz, of the specific frequency used for the high frequency stimulation activation technique, if applicable, in the repetitive nerve study being recorded

 Supplemental Electrophysiology False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12280 Specimen immunohistochemical stain result

Result of immunohistochemical stain performed

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12509 Imaging radio frequency coil category

Type of radio frequency (RF) coil(s) category used for the body part scanned

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12390 Respiratory ventilation mode synchronized intermittent mandatory ventilation pressure support type

Type of synchronized intermittent mandatory ventilation (SIMV) with pressure support ventilation used

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10596 Imaging slice over sampling value

Value of the slice over sampling (as a percentage) used in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17893 Gene missense nonsense variant point mutation location other text

The free-text field about missense/nonsense variant or point mutation at locations other than the exon and intron

 Supplemental Mutation Analysis False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12606 Health insurance private group type

Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

 Supplemental Social Status False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12348 Respiratory high frequency chest wall oscillation system vest type

Type of vest used

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17969 Electrophysiology sensory nerve segment name

The name of the segment used in sensory nerve conduction studies

 Supplemental Electrophysiology False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17955 Cardiovascular ventricular dysrhythmia episode total count

Count of the total number of episodes of a specific ventricular dysrhythmia event recorded during the Holter examination

 Supplemental Holter Examination False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01581 Weight unit of measure

Unit of measure for the weight numerical value

 Supplemental Vital Signs False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17506 Cardiac MRI result comment text

Free-text field describing the results comments on the cardiac magnetic resonance imaging (MRI) results

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12730 Needle electromyography motor unit action potential amplitude measurement

The amplitude value of the motor unit action potential (MUAP) measure during needle electromyography

 Supplemental Electrophysiology False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17940 Spectroscopy geometry voxel slice size anterior posterior value

Value, in mm, of voxel or slice anterior-posterior size for the spectroscopy scan being reported

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12398 Respiratory support schedule daily hour value

Value of the number of hours of daily ventilation device use

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12537 Imaging fat signal suppressor used method type

Type of method used to suppress fat signal in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 226 - 250 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.