CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1053-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12887	C12887	Echocardiogram left ventricular concentric remodel status	Status of concentric remodeling in the left ventricle on the echocardiogram	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12400	C12400	Respiratory oxygen administration method name	Name of method of administration of supplemental oxygen used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C12539	C12539	Imaging fluid attenuated inversion recovery sequence indicator	Indicator of whether FLAIR (fluid attenuated inversion recovery) sequence was used to remove the effects of fluid from the resulting images	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1048-C12229	C12229	Tissue specimen size measurement	Measurement of the size of the tissue specimen collected	Supplemental	Fat Aspirate Tissue Specimens	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12358	C12358	Respiratory intrapulmonary percussive ventilation cup liquid type	Type of liquid in the intrapulmonary percussive ventilation cup	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12693	C12693	Electrophysiology H-reflex nerve segment name	The nerve segment used for the H-reflex test	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F2136-C12835	C12835	ECG bundle branch block type	Type of any complete or incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12231	C12231	Laboratory name	Name of laboratory where assessment was performed	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12895	C12895	Echocardiogram right ventricular internal dimension end systole measurement	Measurement of right ventricular end - systolic internal dimension (RVIDs) obtained by echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1999-C12293	C12293	Tissue specimen intraepidermal nerve fiber density value	Value of the intraepidermal nerve fiber density in the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18835	C18835	Respiratory device other text	The free-text field related to 'Respiratory device type' specifying other text. Type of airway clearance or secretion mobilization device(s) used by the participant/subject	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C18697	C18697	Imaging fat signal suppressor used method other text	The free-text field related to 'Imaging fat signal suppressor used method type' specifying other text. Type of method used to suppress fat signal in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C21668	C21668	ICD-10-CM code	Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1048-C12237	C12237	Specimen overall interpretation status	Status of the overall assessment of the specimen	Supplemental	Fat Aspirate Tissue Specimens	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C10725	C10725	Echocardiogram left ventricular posterior wall thickness end diastole measurement	Measurement of left ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12366	C12366	Respiratory airway clearance medication dose value	Value of the dose of the airway clearance medication used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12241	C12241	Biochemical or genetic test name	Name of the biochemical or genetic test as performed on the specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12903	C12903	Echocardiogram right ventricle end systolic volume index measurement	Measurement calculated from end systolic volume over body surface area for the right ventricle obtained by echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1999-C18831	C18831	Tissue specimen section quantify other text	The free-text field related to 'Tissue specimen section quantify type' specifying other text. Type of quantification used in evaluating the sections taken from the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18843	C18843	Respiratory intrapulmonary percussive ventilation or MetaNeb other text	The free-text field related to 'Respiratory intrapulmonary percussive ventilation or MetaNeb frequency' specifying other text. Frequency of intrapulmonary percussive ventilation or MetaNeb use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1056-C12837	C12837	Cardiac MRI ventricle systolic function result status	Status of the result of the cardiac magnetic resonance imaging (MRI) evaluation of the selected ventricle's systolic function	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1090-C08006	C08006	Symptoms first appear date and time	Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician	Supplemental	Medical History of NMD	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.