CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 1106

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C12607	Education level maternal USA type	Indicator of the highest level of education completed by the participant/subject's mother	Supplemental	Social Status	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12922	Cardiovascular Holter exam atrial dysrhythmia episode total number	Total number of episodes of a specific atrial dysrhythmia event recorded during the Holter examination	Supplemental	Holter Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12848	Cardiac MRI left ventricle non-compaction result	Result of the evaluation of the left ventricle for non-compaction as observed by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12163	Spectroscopy water reference data acquire indicator	Indicator whether water reference data was acquired in addition to water suppression acquisition data	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C17877	Polysomnography end time clock type	Type of clock used to record the time at which the sleep study ended	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C01710	Pregnancy test qualitative result value	Result of the pregnancy test	Supplemental	Laboratory Tests and Tracking	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C10592	Imaging flow compensation indicator	Indicator of whether flow compensation was used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12746	Electrophysiology fiber density quantitative result value	Fiber density measured for a particular muscle and side	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12426	Polysomnography study type	Type of polysomnography (sleep study) that is being reported	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12705	Electrophysiology sensory nerve velocity measurement	The signal transmission speed measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant/subject's medical history was taken	Supplemental	Medical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C10867	Dynamometry hand held muscle test performed anatomic site	The type of muscle tested using hand held dynamometry	Supplemental	Hand Held Dynamometry	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12937	Cardiovascular Holter exam symptom description text	Description of symptoms documented during arrhythmias detected during the Holter examination	Supplemental	Holter Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12858	Cardiac MRI other cardiac anatomy evaluate name	Name of other cardiac anatomy that was evaluated by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12370	Respiratory support device type	Type of respiratory support or assisted ventilation device used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C10743	Echocardiogram degree of tricuspid regurgitation status	Assessment with echocardiography of whether there is the failure of the heart's tricuspid valve to close properly during systole	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12209	Gastrointestinal therapy feed schedule table number	Number of the table used to describe the participant/subject's feeding schedule	Supplemental	Gastrointestinal Therapies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C18857	Imaging brainstem abnormality other text	The free-text field related to 'Imaging brainstem abnormality type' specifying other text. The type of abnormality in the brainstem on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C18847	Respiratory support device other text	the free-text field related to 'Respiratory support device type' specifying other text. Type of respiratory support or assisted ventilation device used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12803	Gene variant or mutation implications confirmed mRNA analysis indicator	Whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis	Supplemental	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12486	Imaging other cortical abnormality type	The type of other cortical abnormality	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C02498	Imaging scanner software version number	Version number of the imaging scanner software	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12256	Biopsy and autopsy eccentric nuclei estimated fibers percent value	Estimated percent of fibers in eccentric nuclei	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C17961	Cardiovascular aortic stenosis regurgitation comment text	The text detailing the comments of the degree of stenosis and regurgitation for the aortic valve	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C18714	Imaging radio frequency coil channel count other text	The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.