CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12295 Laboratory pathology normal range age match indicator

Indicator of whether the pathology laboratory's normal range of intraepidermal nerve fiber density is age-matched to the patient from whom the tissue specimen was taken

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12789 Gene deletions duplications limits clearly defined indicator

Whether the limits of deletions and duplications are defined

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12496 Imaging cerebellum abnormal indicator

Indicator as to whether the cerebellum appears normal or abnormal in the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04800 Death cause text

Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18714 Imaging radio frequency coil channel count other text

The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10727 Echocardiogram LVIDd measurement

Left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12324 Respiratory mechanical in-exsufflator inhale duration

Value of the inhale time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12199 Gastrointestinal therapy feed method type

Type of method by which the participant/subject receives therapeutic feedings

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12435 Polysomnography blood oxygen saturation mean total sleep measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) for total sleep from the polysomnography being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12243 Microscopy epon embedded tissue abnormality type

Type of microscopy employed to view abnormalities in epon-embedded tissue specimen

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12905 Echocardiogram left ventricular mass index measurement

The left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume, corrected for body surface area

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58650 Tissue specimen section thickness not known indicator

Indicator that the tissue specimen thickness is not known

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12504 Imaging gray matter hyperintensity T2 fluid attenuated inversion recovery site

The type of anatomical site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10501 Diagnosis initial age value

Age of the participant/subject when initially diagnosed with disease/disorder

Supplemental Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12175 Dual X-ray absorptiometry performed date

The date the Dual X-ray absorptiometry (DEXA) was performed

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10741 Echocardiogram degree of aortic regurgitation status

Assessment with echocardiography of whether there is leaking of the aortic valve of the heart that causes blood to flow in the reverse direction during ventricular diastole, from the aorta into the left ventricle

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12332 Respiratory manual percussion use frequency

Frequency of use of manual percussion therapy

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12208 Gastrointestinal therapy nutrition supplement type

Type(s) of nutritional supplement(s) being taken by the participant/subject

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10682 Imaging anatomic site

Type of body part or anatomy scanned in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12443 Polysomnography percent awake time percent blood oxygen saturation value

Value representing the amount of waking time, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18846 Respiratory other airway clearance method use other text

The free-text field related to 'Respiratory other airway clearance method use frequency' specifying other text. Frequency of use of other airway clearance methods

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17901 Elevated creatine kinase Indicator

Indicator of whether participant/subject experienced elevated creatine kinase levels

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12843 Cardiac MRI ventricle end systolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12713 Electrophysiology blink reflex test ipsilateral R2 latency value

Duration of ipsilateral R2 latency in the blink reflex test

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 176 - 200 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.