CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1076 - 1100 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

Exploratory Grip Strength Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10974 Manual muscle testing muscle score

The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Core Family History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18253 Clinical trial previous participation indicator

Indicator of whether the participant/subject participated in any prior clinical trials

Core Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Core Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Core Family History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10970 Manual muscle testing date and time

Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Core Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10971 Manual muscle testing visit type

The type of visit at which the manual muscle testing was performed

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 1076 - 1100 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.