CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1051 - 1075 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C04515 ECG ventricular arrhythmia type

Type of ventricular arrythmia, if any, apparent on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17874 Pulmonary function test not done indicator

Was the pulmonary function test not done

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12226 Specimen source type

Type of specimen collection source

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12782 Gene additional variants unknown significance indicator

Whether there are additional variants in other genes of unknown significance

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58651 Tissue specimen section count unknown indicator

Indicator that the count of tissue speciments is unknown

Supplemental-Highly Recommended Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12528 Biopsy and autopsy nemaline rods restricted to one fiber text

Nemaline rods restricted to one fiber text

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11098 Pulmonary function test date and time

Date the pulmonary function test was performed

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12313 Pulmonary function maximal pressure trial difference indicator

Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17875 Pulmonary function test text

Other type of pulmonary function testing performed

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12783 Variant mutational analysis results available indicator

Whether the variant or mutational analysis results are available on this participant/ subject

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04500 ECG atrial arrhythmia type

Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12304 Pulmonary function test equipment model name

Name of model of the pulmonary function test equipment

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04508 ECG previous myocardial infarction status

Status of patterns of previous myocardial infarction apparent on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Supplemental-Highly Recommended Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11099 Pulmonary function test type

Type of pulmonary function testing performed

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12226 Specimen source type

Type of specimen collection source

Supplemental-Highly Recommended Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12314 Pulmonary function forced vital capacity cough exhalation indicator

Whether or not the participant coughed during the first second of exhalation in any trial for forced vital capacity (FVC)

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17876 Pulmonary function test not done text

If the PFT was not performed on the participant/subject, specify other reason

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12784 Variant mutational analysis performed family member indicator

Whether the mutational analysis was performed on a family member

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04501 ECG assessment date and time

Date (and time, if applicable and known) the electrocardiogram (EKG) was administered

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12305 Pulmonary function test equipment software program name

The software program used in the pulmonary function test equipment

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11100 Pulmonary function test position type

Participant's/subject's position for the pulmonary function assessment

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 1051 - 1075 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.