CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1026 - 1050 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12322 Respiratory mechanical in-exsufflator inhale pressure value

Value of the inhale pressure setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18853 Pulmonary gas exchange assessment performed other text

The free-text field related to 'Pulmonary gas exchange assessment performed location' specifying other text. The location where the gas exchange assessment was performed

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12433 Polysomnography apnea hypopnea index type REM event count

Count of rapid eye movement (REM) sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12241 Biochemical or genetic test name

Name of the biochemical or genetic test as performed on the specimen

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12903 Echocardiogram right ventricle end systolic volume index value

Calculated from end systolic volume over body surface area - right ventricle

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18831 Tissue specimen section quantify other text

The free-text field related to 'Tissue specimen section quantify type' specifying other text. Type of quantification used in evaluating the sections taken from the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12795 Gene coding region sequenced indicator

For missense/nonsense variant or point mutations or pseudoexons, whether the entire coding region was sequenced for the allele of the gene

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12502 Imaging anterior commissure type indicator

The condition of the anterior commissure

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12301 Pulmonary Function Test seat position type

The seated position of the participant/subject during the assessment

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12277 Biospecimen fragment collect count

Count of fragments collected in the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject

Supplemental-Highly Recommended Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12525 Biopsy and autopsy fiber abnormality type

Fiber type abnormalities on a muscle biopsy

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12226 Specimen source type

Type of specimen collection source

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04505 ECG left ventricular hypertrophy status

Status of left ventricular hypertrophy on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12310 Pulmonary function complete exhalation indicator

Whether the complete amount of air was exhaled from the participant/subject

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04513 ECG ST segment abnormality status

Status of an abnormal interval between the end of the QRS complex and the beginning of the T wave (ST segment) appears abnormal on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12318 Pulmonary function forced vital capacity peak flow indicator

Whether or not there was a clearly defined peak flow during any of the trials for forced vital capacity (FVC)

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12303 Pulmonary function test equipment manufacturer name

Name of manufacturer of the pulmonary function test equipment

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12278 Specimen histochemical stain diagnostic abnormality type

Types of diagnostic abnormalities noted on the histochemical stains performed on the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12526 Biopsy and autopsy type 1 predominance fiber percentage value

Percentage of Type 1 predominance fiber present

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04506 ECG right ventricular hypertrophy status

Status of right ventricular hypertrophy on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12311 Pulmonary function index of lung function type

The different functions of the lungs tested during pulmonary function test (PFT)

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04514 ECG T wave abnormality indicator

Indicator whether the T wave appears abnormal on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 1026 - 1050 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.