CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1001 - 1025 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12848 Cardiac MRI left ventricle non-compaction result status

Status of the result of the evaluation of the left ventricle for non-compaction as observed by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12718 Electrophysiology repetitive nerve stimulation study preactivation number

The numeric identifier corresponding to the amplitude and area values recorded for preactivation during the repetitive nerve stimulation study

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12160 Spectroscopy water suppression indicator

Indicator of whether water suppression was used for the spectroscopy scan being reported

Supplemental Magnetic Resonance Spectroscopy (MRS) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18852 Respiratory oxygen administration method other text

The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10592 Imaging flow compensation indicator

Indicator of whether flow compensation was used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12602 Discharge post acute location

Location, post-acute discharge, at which participant/subject is currently staying

Supplemental Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12769 Electrophysiology long pre-exercise compound muscle action potential time

The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the long exercise test

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12937 Cardiovascular Holter exam arrhythmia symptom description text

Free-text field describing symptoms documented during arrhythmias detected during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12532 Gastrointestinal therapy feed tube first place date

Date on which the participant/subject's feeding tube was first placed

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12801 Gene point mutation nonsense variant codon type

Type of nonsense variant or point mutation

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12858 Cardiac MRI other cardiac anatomy evaluate name

Name of other cardiac anatomy that was evaluated by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12726 Electrophysiology repetitive nerve postactivation amplitude measurement

Measurement, in mV, of the amplitude of the postactivation being described at the time specified for the repetitive nerve study being recorded

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12543 Imaging anatomical reference sequence text

Text specification of the anatomical reference image sequence in the scan being reported

Supplemental Magnetic Resonance Spectroscopy (MRS) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12410 Pulmonary gas exchange fraction of inspired oxygen value

The fraction of inspired oxygen (FIO2) in the blood

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10927 Imaging inversion time duration

Duration of the time period between the 180 degree inversion pulse and the 90 degree excitation pulse in an Inversion Recovery pulse sequence

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18861 Health insurance private group other text

The free-text field related to 'Health insurance private group type' specifying other text. Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12286 Tissue specimen section thickness measurement

Measurement in microns of the thickness of the section taken from the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12242 Biochemical or genetic test result value

Results of the biochemical or genetic test performed on the specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C05105 Surgical or therapeutic procedure end date and time

Date on which the surgical or therapeutic procedure ended

Supplemental Surgical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Hand Held Dynamometry Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17959 Cardiovascular Holter exam longest run tachycardia episode value

Value of the longest run of a tachycardia episode during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12669 Height or length measurement type

Type of height or length measurement taken

Supplemental Vital Signs Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 1001 - 1025 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.