CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12339 Respiratory lung volume recruitment use frequency

Frequency of lung volume recruitment use

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18777 ECG heart rhythm result type other text

The free-text field related to 'ECG heart rhythm result type', specifying other text. Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12238 Biopsy and autopsy epon embedded tissue abnormalities location type

Type of abnormality observed microscopically in epon-embedded tissue specimen

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12900 Echocardiogram left ventricle end systolic volume measurement

Measurement of imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17909 Tissue specimen comment other text

Text description of any other comments pertaining to the pathology examination of the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12931 Cardiovascular Holter exam premature ventricular contraction percentage value

Value of the percent of premature ventricular contractions the participant experienced during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18862 Death location other text

The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12851 Cardiac MRI left ventricle noncompaction position anatomic site

Anatomic site or position on the left ventric le of any non-compaction observed by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10731 Echocardiogram right atrial enlargement status

Status of right atrial enlargement on the echocardiogram

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

Supplemental Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12750 Electrophysiology motor unit number estimation surface motor unit action potential average count

Number of surface motor unit action potentials (sMUAPs) averaged to arrive at the average sMUAP value

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12530 Biopsy autopsy COX-negative fibers estimated count

COX-negative fibers estimated number

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18719 Imaging slice orientation type other text

The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12707 Electrophysiology H-reflex latency left value

The H-reflex duration of latency for the left side of the body

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12192 Dual X-ray absorptiometry whole body bone mineral density value

The amount of bone mineral density (BMD)for dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12535 Gastrointestinal therapy feed schedule end date

Date on which the feeding schedule for gastrointestinal therapy ended, if applicable

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12480 Imaging cortex-pachygyria thickness measurement

The measurement of cortex thickness, in , of the cortex

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17793 Imaging diffusion fourth b value

Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12460 Polysomnography end tidal or transcutaneous carbon dioxide increase indicator

Indicator of whether there was an increase of more than 10 millimeters of mercury (mmHg) in end-tidal CO2 or transcutaneous CO2 at any time during sleep

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12413 Pulmonary blood gas type

The type of blood gas collected

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Supplemental Physical Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12759 Electrophysiology quantitative sweat function forearm measurement

The amount of sweat collected on the forearm

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17904 Biopsy and autopsy pathological inclusions text

Text describing pathological inclusions (if any)

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18859 Imaging cerebellum abnormality other text

The free-text field related to 'Imaging cerebellum abnormality type' specifying other text. The type of abnormality in the cerebellum on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12716 Electrophysiology repetitive nerve stimulation study stimulus duration

Duration, in ?s, of stimulation in the repetitive nerve study being recorded

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 101 - 125 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.