CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant is ongoing

Supplemental Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12361 Respiratory other airway clearance method use daily freq

Frequency of use of other airway clearance method on a daily basis

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12896 Echocardiogram left ventricle end diastolic volume measurement

Measurement of imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12294 Laboratory pathology normal range

Range of intraepidermal nerve fiber density that is considered normal at the pathology laboratory examining the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12788 Gene exon copy number tested indicator

Indicator of whether the copy number was directly tested for all exons

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12494 Imaging pons abnormal indicator

Indicator of whether the pons appears normal or abnormal in the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C21669 Surgical therapeutic procedure ICD-10-CM other text

The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

Supplemental Surgical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10726 Echocardiogram left interventricular septal thickness end diastole measurement

Measurement of left ventricular end - diastolic septal thickness (IVSTd) obtained by echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12323 Respiratory mechanical in-exsufflator exhale pressure value

Value of the exhale pressure setting for the mechanical in-exsufflator used by the participant/subject

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12198 Gastrointestinal therapy received indicator

Indicator of whether the participant/subject is currently receiving any gastrointestinal (GI) therapies

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12434 Polysomnography apnea hypopnea index type non-REM event count

Count of non-rapid eye movement (REM) sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12242 Biochemical or genetic test result value

Results of the biochemical or genetic test performed on the specimen

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12904 Echocardiogram left ventricular mass measurement

Measurement of the left ventricular mass, calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume multiplied by an estimate of the myocardial density obtained by echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18832 Tissue specimen section quantify volume normalize other text

The free-text field related to 'Tissue specimen section quantify volume normalize type' specifying other text. Type of method used to normalize the volume of the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12796 Gene targeted variant mutational analysis indicator

Indicator of whether variant or mutational analysis was targeted at a particular variant or mutation

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12502 Imaging anterior commissure change status

Status related to changes in the anterior limb internal capsule observed in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12173 Dual X-ray absorptiometry scan anatomical site

Site on the body that was scanned for dual X-ray absorptiometry (DXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10740 Echocardiogram left ventricle ejection fraction measurement

Measurement of the fraction of blood pumped out of the left ventricles with each heart beat obtained by echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12331 Respiratory manual cough assist session time

The duration of manual cough assist use per session

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12207 Gastrointestinal therapy take nutrition supplement indicator

Indicator whether the participant/subject is taking nutritional supplements

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12442 Polysomnography percent sleep time non-REM percent blood oxygen saturation value

Value representing the amount of non-rapid eye movement (REM) sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 101 - 125 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.