CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 926 - 950 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12257 Biopsy and autopsy nemaline rod type

Rod-shaped structures, visible at high magnification, which are most visible on Gomori trichrome stain and on EM preparations

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12187 Dual X-ray absorptiometry distal femur T score

Dual X-ray absorptiometry (DEXA) distal femur T score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17962 Cardiovascular tricuspid valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04509 ECG PR interval

Interval in milliseconds (msec) from the start of the P wave to the start of the QRS complex (PR interval) for the electrocardiogram (ECG/EKG) being recorded

Supplemental Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12223 Gastrointestinal therapy other oral intake estimate caloric value

Value of the subject/participant's caloric intake received through other oral intake

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12603 Birth length value

Measurement of the participant's/subject's length at birth

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10691 Imaging spatially registered template indicator

Indicator as to whether or not imaging is spatially registered to a template for data analysis

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12865 Echocardiogram left atrial volume measurement

Measurement of the left atrial volume obtained by echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12455 Polysomnography transcutaneous carbon dioxide measurement grade

Grade of the transcutaneous CO2 (TcCO2) measurements being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12408 Pulmonary gas exchange assessment performed location

The location where the gas exchange assessment was performed

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12474 Imaging field of view measurement description text

The free-text field to generally describe field of view (FOV) or anatomical positioning

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12855 Cardiac MRI myocardial scar result status

Status of the result of evaluation of the cardiac magnetic resonance imaging (MRI) for my ocardial scarring on the selected ventricle

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12724 Electrophysiology repetitive nerve postactivation elapsed time duration

Interval, in minutes, elapsed after nerve stimulation, at which time postactivation data are being recorded for the repetitive nerve study being recorded

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17896 Variant mutational analysis not performed reason

Reason for why the mutational analysis was not performed

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12511 Imaging post-processing raw data save indicator

Indicator of whether raw data was saved in post processing

Supplemental Magnetic Resonance Spectroscopy (MRS) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12351 Respiratory high frequency chest wall oscillation system session time

Time of high frequency chest wall oscillation system use per session

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10685 Imaging slice orientation type

Type of slice orientation used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12247 Biopsy and Autopsy tissue collection method type

The type of method used for collection of the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18809 Electrophysiology motor unit number estimation nerve other text

The free-text field related to 'Electrophysiology motor unit number estimation nerve type' specifying other text. Type of nerve where an electrical signal is measured with the MUNE (motor unit number estimation) technique

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C02498 Imaging scanner software version number text

Free-text field specifying the version number of the imaging scanner software

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17957 Cardiovascular Holter exam premature ventricular contraction count

Count of premature ventricular contractions per 24 hours

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12401 Respiratory oxygen flow rate

The flow rate value of supplemental oxygen

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17929 Cardiac MRI overall impression text

Free-text field describing the overall impression of the cardiac magnetic resonance imaging (MRI) being reported

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 926 - 950 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.