CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 901 - 925 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17402 Site name

The name of the site for the study

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00002 Post conceptional age value

Gestational age plus postnatal age of the participant/subject

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12179 Dual X-ray absorptiometry hip Z score

Dual X-ray absorptiometry (DEXA) Hip Z score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10745 Echocardiogram early mitral inflow velocity measurement

Measurement of the diastolic pressure difference between the left ventricle and left atrium (E) assessed with echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12213 Gastrointestinal therapy continuous feed start time

Time of day that the participant/subject's continuous feeding is normally begun

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10931 Imaging quality of images technically satisfactory indicator

Indicator of whether the quality of the images were technically satisfactory

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10592 Imaging flow compensation indicator

Indicator of whether flow compensation was used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18850 Respiratory tracheostomy tube timing other text

The free-text field related to 'Respiratory tracheostomy tube timing type' specifying other text. Type of inflation/deflation timing settings for cuffed tubes

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12451 Polysomnography end tidal carbon dioxide REM sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during rapid eye movement (REM) sleep

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12818 Gene second allele identical indicator

Whether allele #2 is identical to allele #1

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12389 Respiratory ventilation mode assist control type

Type of assist control ventilation used

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12605 Caregiver primary type

Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject

Supplemental Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12347 Respiratory high frequency chest wall oscillation system brand name

Name of the brand of thee high frequency chest wall oscillation system brand of device used

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12768 Electrophysiology short post-exercise compound muscle action potential measurement

The compound muscle action potential (CMAP) values measured at the post-exercise intervals

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12936 Cardiovascular Holter exam symptomatic during arrhythmias indicator

Whether the participant/subject was symptomatic during the arrhythmias detected during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental Vital Signs Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12857 Cardiac MRI myocardial scar segment anatomic site

Anatomic site or segment of the heart where myocardial scarring was observed on the cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12725 Electrophysiology repetitive nerve postactivation number

The numeric value given to the amplitude and area values recorded for postactivation during the repetitive nerve stimulation study

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12283 Tissue abnormality mitochondria type

Type of any mitochondrial abnormality observed in the epon-embedded tissue specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12543 Imaging anatomical reference sequence text

Text specification of the anatomical reference image sequence in the scan being reported

Supplemental Magnetic Resonance Spectroscopy (MRS) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10837 Imaging gap between slices measurement

Measurement of the gap between slices used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17896 Variant mutational analysis not performed reason

Why the mutational analysis was not performed

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12397 Respiratory support use frequency

Frequency of ventilation device use

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 901 - 925 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.