CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1056-C12857	C12857	Cardiac MRI myocardial scar segment anatomic site	Anatomic site or segment of the heart where myocardial scarring was observed on the cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1050-C12283	C12283	Tissue abnormality mitochondria type	Type of any mitochondrial abnormality observed in the epon-embedded tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C12542	C12542	Imaging nuclei type	The type as related to nuclei in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12393	C12393	Respiratory positive end-expiratory pressure expiratory positive airway pressure value	Value of the positive end-expiratory pressure (PEEP)/expiratory positive airway pressure (EPAP)	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C10837	C10837	Imaging gap between slices measurement	Measurement of the gap between slices used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1046-C17896	C17896	Variant mutational analysis not performed reason	Reason for why the mutational analysis was not performed	Supplemental	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1032-C12819	C12819	Disability benefit indicator	Indicator of whether participant/subject receives disability benefit payments	Supplemental	Social Status	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12256	C12256	Biopsy and autopsy eccentric nuclei estimated fibers percent value	Estimated percent of fibers in eccentric nuclei	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12351	C12351	Respiratory high frequency chest wall oscillation system session time	Time of high frequency chest wall oscillation system use per session	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1091-C11062	C11062	Maternal delivery age value	Mother's age at the time she gave birth to the participant/subject	Supplemental	Prenatal and Perinatal History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1059-C17958	C17958	Cardiovascular Holter exam fastest run tachycardia episode value	Value of the heart rate during the fastest run of a tachycardia episode	Supplemental	Holter Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1056-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C17943	C17943	Spectroscopy geometry matrix in-plane size value	Value of the in-plane matrix size, if applicable for the spectroscopy scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12401	C12401	Respiratory oxygen flow rate	The flow rate value of supplemental oxygen	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C12540	C12540	Imaging T2 measurement indicator	Indicator of whether T2 measurement was used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1048-C12230	C12230	Tissue specimen collection date and time	Date (and time if applicable and known) when the tissue specimen was collected	Supplemental	Fat Aspirate Tissue Specimens	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1033-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12264	C12264	Biopsy and autopsy abnormal cell name	List of abnormal cell types found in biopsy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12359	C12359	Respiratory other airway clearance method name	Name of airway clearance method used by the participant/subject other than mechanical in-exsufflator, manual cough assist, manual percussion, postural drainage, lung volume recruitment, and intrapulmonary percussive ventilation	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F2136-C10758	C10758	ECG WPW syndrome status	Status of whether ventricular preexcitation / Wolff-Parkinson-White syndrome (WPW) is present or absent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1020-C10871	C10871	Dynamometry hand held muscle test able to break technique indicator	Indicator of whether the examiner overpowered the maximal effort by the participant/subject, thereby producing a measurement of eccentric muscle strength	Supplemental	Hand Held Dynamometry	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C17952	C17952	Spectroscopy sequence parameter echo time duration	Duration, in ms, of the echo time (TE) as a spectroscopic sequence parameter in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.