CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12901 Echocardiogram right ventricle end systolic volume measurement

Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12793 Gene exon predicted reading frame type

Type of predicted reading frame

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12499 Imaging T2 weighted white matter abnormality site type

The type of anatomical site of the white matter abnormality on T2 weighted images

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C21665 Death cause ICD-10-CM code

ICD-10-CM code that describes the cause of participant/subject's death

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18719 Imaging slice orientation type other text

The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10732 Echocardiogram right ventricular enlargement status

Status of right ventricular enlargement on the echocardiogram

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12328 Respiratory mechanical in-exsufflator session cycle breath count

Count of the breaths per cycle completed per session when the participant/subject used the mechanical in-exsufflator

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12204 Gastrointestinal therapy fundoplication age value

Value of the participant/subject's age at which s/he had fundoplication surgery

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08255 Imaging visual analysis blinded indicator

Indicator of whether the visual analysis was performed blinded to clinical data

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

Supplemental Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12752 Electrophysiology heart rate variability value

The heart rate variability with deep breathing measured during autonomic function testing

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10873 Holter exam start date and time

Date (and time, if applicable and known) the Holter examination began

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12531 Biopsy autopsy excessive glycogen severity result

Severe glycogen storage pathology involves excess PAS+ material that is easily identifiable on light microscopy and is evident on other stains including H and E. Mild glycogen storage pathology is difficult to determine at the light microscopic level and may only be evident on PAS stain or electron microscopy

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18844 Respiratory medication nebulized other text

The free-text field related to 'Respiratory medication nebulized type' specifying other text. Type of the medication(s) nebulized

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12839 Cardiac MRI ventricle end diastolic dimension measurement

Measurement of the diameter across the selected ventricle at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12708 Electrophysiology H-reflex latency right value

The H-reflex duration of latency for the right side of the body

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10948 Imaging field of view axis 3 measurement

Axis 3 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Magnetic Resonance Spectroscopy (MRS) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12376 Respiratory positive pressure initiation age value

Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, positive pressure device

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12801 Gene point mutation nonsense variant codon type

Type of nonsense variant or point mutation

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18751 Sex participant or subject genotype other text

The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12335 Respiratory postural drainage use frequency

Frequency of postural drainage use

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01012 Physical exam body system result type

Assessment result of each body system examined

Supplemental Physical Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12760 Electrophysiology quantitative sweat function proximal leg measurement

The amount of sweat collected on the proximal leg

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 251 - 275 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.