CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1060-C10728	C10728	Echocardiogram LVIDs measurement	Left ventricular end - systolic internal dimension (LVIDs) measured with echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12872	C12872	Echocardiogram mitral stenosis degree status	Assessment with echocardiography of whether there is stenosis of the mitral valve of the heart	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12875	C12875	Echocardiogram mitral valve prolapse indicator	Assessment with echocardiography of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C10724	C10724	Echocardiogram performed date and time	Date (and time, if applicable and known) the echocardiography was performed	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12912	C12912	Echocardiogram pericardial effusion abnormal indicator	Whether there is pericardial effusion or abnormality observed by echocardiogram	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C54237	C54237	Echocardiogram pericardial effusion abnormal text	Free-text field to describe pericardial effusion or abnormality observed by echocardiogram	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12874	C12874	Echocardiogram pulmonic regurgitation degree status	Assessment with echocardiography of whether there is regurgitation of the pulmonary valve of the heart	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12870	C12870	Echocardiogram pulmonic stenosis degree status	Assessment with echocardiography of whether there is stenosis of the pulmonary valve of the heart	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12913	C12913	Echocardiogram quality study type	Quality of the echocardiogram study	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C18878	C18878	Echocardiogram result other text	The free-text field related to 'Echocardiogram result status' specifying other text. The global results of the echocardiogram	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12914	C12914	Echocardiogram result status	The global results of the echocardiogram	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C10731	C10731	Echocardiogram right atrial enlargement status	Status of absence or presence of right atrial enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12910	C12910	Echocardiogram right atrial pressure measurement	Right atrial pressure measured by echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12894	C12894	Echocardiogram right ventricle diastolic internal dimension (RVIDd) measurement	Right ventricular end - diastolic internal dimension (RVIDd) measured with echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12888	C12888	Echocardiogram right ventricle ejection fraction measurement	Fraction of blood pumped out of the right ventricles with each heart beat measured with echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12899	C12899	Echocardiogram right ventricle end diastolic volume index measurement	Calculated from end diastolic volume over body surface area - right ventricle	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12897	C12897	Echocardiogram right ventricle end diastolic volume measurement	Imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12903	C12903	Echocardiogram right ventricle end systolic volume index value	Calculated from end systolic volume over body surface area - right ventricle	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12901	C12901	Echocardiogram right ventricle end systolic volume measurement	Imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12889	C12889	Echocardiogram right ventricle fraction shorten measurement	Measurement of the difference between end-diastolic and end-systolic dimensions of the right ventricle divided by end-diastolic dimension assessed with echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = RV End Diastolic Dimension and ESD = RV End Systolic Dimension	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12891	C12891	Echocardiogram right ventricle function status	The ability of the right ventricle to perform its regular functions normally	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C54234	C54234	Echocardiogram right ventricle IVSTd measurement	Right ventricular end - diastolic septal thickness (IVSTd) measured with echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12907	C12907	Echocardiogram right ventricle non-compaction status	Status of non-compaction in the right ventricle as assessed by echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C54235	C54235	Echocardiogram right ventricle PWTd measurement	Right ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C12895	C12895	Echocardiogram right ventricle systolic internal dimension (RVIDs) measurement	Right ventricular end - systolic internal dimension (RVIDs) measured with echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.