CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12276 Biopsy and autopsy mitochondria abnormality type

Type of mitochondria abnormality in muscle biopsy

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12404 Respiratory oxygen use schedule daily hours value

Value of the number of hours of supplemental oxygen use per day

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Supplemental Fat Aspirate Tissue Specimens Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12362 Respiratory other airway clearance method session time

Time it takes per session for the participant/subject to use the other airway clearance method

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04800 Death cause text

Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12324 Respiratory mechanical in-exsufflator inhale duration

Value of the inhale time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12199 Gastrointestinal therapy feed method type

Type of method by which the participant/subject receives therapeutic feedings

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12435 Polysomnography blood oxygen saturation mean total sleep measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) for total sleep from the polysomnography being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12243 Microscopy epon embedded tissue abnormality type

Type of microscopy employed to view abnormalities in epon-embedded tissue specimen

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10501 Diagnosis initial age value

Age of the participant/subject when initially diagnosed with disease/disorder

Supplemental Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12332 Respiratory manual percussion use frequency

Frequency of use of manual percussion therapy

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12208 Gastrointestinal therapy nutrition supplement type

Type(s) of nutritional supplement(s) being taken by the participant/subject

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12443 Polysomnography percent awake time percent blood oxygen saturation value

Value representing the amount of waking time, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18846 Respiratory other airway clearance method use other text

The free-text field related to 'Respiratory other airway clearance method use frequency' specifying other text. Frequency of use of other airway clearance methods

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12254 Biopsy and autopsy myopathy-associated pathological structures type

The type of myopathy-associated pathological structures seen in the histology of the biopsy or autopsy specimen

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17931 Imaging magnetic resonance imaging performed indicator

Indicator as to whether or not Magnetic Resonance Imaging (MRI) on the brain has been performed on the participant/subject

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12183 Dual X-ray absorptiometry proximal femur raw score

Dual X-ray absorptiometry (DEXA) proximal femur raw score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12862 Echocardiogram left atrial enlargement status

Status of left atrial enlargement on the echocardiogram

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12218 Gastrointestinal therapy formula name

Name of the formula taken by the participant/subject for non-continuous feeding

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12451 Polysomnography end tidal carbon dioxide REM sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during rapid eye movement (REM) sleep

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 201 - 225 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.