CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12238 Biopsy and autopsy epon embedded tissue abnormalities location type

Type of abnormality observed microscopically in epon-embedded tissue specimen

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17909 Tissue specimen comment other text

Text description of any other comments pertaining to the pathology examination of the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12792 Gene whole deletion indicator

Whether the entire gene was deleted

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18862 Death location other text

The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12327 Respiratory mechanical in-exsufflator session cycle set count

Count of the number of cycles completed per session when participant/subject used the mechanical in-exsufflator

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12203 Gastrointestinal therapy fundoplication date

Date on which the participant/subject had fundoplication surgery

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12438 Polysomnography blood oxygen saturation mean awake measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) while the participant/subject was awake, from the polysomnography being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12248 Pathologist name

Name of pathologist who diagnosed the case

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12908 Echocardiogram intracardiac find type

Type of intracardiac findings observed by echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12178 Dual X-ray absorptiometry hip T score

Dual X-ray absorptiometry (DEXA) Hip T score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12212 Gastrointestinal therapy feed duration

Duration of feedings received by the participant/subject

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10837 Imaging gap between slices measurement

Measurement of the gap between slices used in imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12446 Polysomnography blood oxygen saturation drop hour non-REM sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during non-rapid eye movement (REM) sleep time

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18849 Respiratory support negative pressure device delivery method other text

The free-text field related to 'Respiratory support negative pressure device delivery method type' specifying other text. Type of non-invasive, negative pressure delivery method supported by the device

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12305 Pulmonary function test equipment software program name

The software program used in the pulmonary function test equipment

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12257 Biopsy and autopsy nemaline rod type

Rod-shaped structures, visible at high magnification, which are most visible on Gomori trichrome stain and on EM preparations

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12603 Birth length value

Measurement of the participant's/subject's length at birth

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12186 Dual X-ray absorptiometry distal femur raw score

Dual X-ray absorptiometry (DEXA) distal femur raw score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12222 Gastrointestinal therapy other oral intake text

Text of other nutriment taken orally, if any

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10687 Imaging diffusion first b value

Value, in square millimeters per second, of the first b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12454 Polysomnography transcutaneous carbon dioxide measured indicator

Indicator of whether transcutaneous CO2 (TcCO2) was measured in the polysomnography being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12407 Pulmonary gas exchange assessment date

The assessment date of the gas exchange measurement

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12314 Pulmonary function forced vital capacity cough exhalation indicator

Whether or not the participant coughed during the first second of exhalation in any trial for forced vital capacity (FVC)

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 176 - 200 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.