CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1053-C10577	C10577	Imaging signal averages number	Number of signal acquisitions averaged in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12528	C12528	Biopsy and autopsy nemaline rods restricted to one fiber text	Nemaline rods restricted to one fiber text	Supplemental-Highly Recommended	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18841	C18841	Respiratory high frequency chest wall oscillation system vest other text	The free-text field related to 'Respiratory high frequency chest wall oscillation system vest type' specifying other text. Type of vest used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12705	C12705	Electrophysiology sensory nerve velocity measurement	The signal transmission speed measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1050-C12230	C12230	Tissue specimen collection date and time	Date (and time if applicable and known) when the tissue specimen was collected	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C10938	C10938	Imaging STEAM mixing duration	Duration, in ms, of the STEAM mixing time (TM) as a spectroscopic sequence parameter in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12372	C12372	Respiratory support device model name	Name of the model of the respiratory support or assisted ventilation device	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C11138	C11138	Country of origin paternal ISO code	The ISO 3166-1 alpha-2 code for the participant's father's country of origin	Supplemental	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1997-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12757	C12757	Electrophysiology blood pressure response Valsalva phase II late result	The blood pressure response to valsalva maneuver during Phase II late	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C17902	C17902	Elevated creatine kinase value	The elevated creatine kinase value	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12714	C12714	Electrophysiology blink reflex test contralateral R2 latency value	Duration of contralateral R2 latency in the blink reflex test	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1050-C12239	C12239	Electron microscopy performed indicator	Indicator of whether electron microscopy was performed	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C10960	C10960	Spectroscopy PRESS symmetry type	Whether the echo time (TE) used in the PRESS (double spin-echo) sequence is symmetrically or asymmetrically divided	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12382	C12382	Respiratory tracheostomy tube brand style name	Name of the brand/style of the invasive tracheostomy device used by the participant/subject	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C10586	C10586	Imaging bandwidth value	Value, in Hertz per pixel, of bandwidth used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1032-C00206	C00206	Family income supported persons count	Count of all people, including the participant/subject, who are supported by the household gross annual income reported	Supplemental	Social Status	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12340	C12340	Respiratory lung volume recruitment daily frequency	Frequency of daily use of the lung volume recruitment	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1016-C10971	C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12765	C12765	Electrophysiology short pre-exercise compound muscle action potential time	The time intervals used to measure compound muscle action potential (CMAP) during pre-exercise	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1059-C12933	C12933	Cardiovascular Holter exam ventricular contraction count type	Type of ventricular contraction for which the total number of occurrences is recorded	Supplemental	Holter Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12722	C12722	Electrophysiology repetitive nerve high frequency	Value, in Hz, of the specific frequency used for the high frequency stimulation activation technique, if applicable, in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1050-C12280	C12280	Specimen immunohistochemical stain result	Result of immunohistochemical stain performed	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C12509	C12509	Imaging radio frequency coil category	Type of radio frequency (RF) coil(s) category used for the body part scanned	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.