CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12709 Electrophysiology blink reflex test electrode type

Type of electrode used for the blink reflex test

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12461 Polysomnography heart rate measurement grade

Grade of the heart rate (HR) measurements being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12414 Pulmonary blood gas pH value

The numeric value of the blood gas pH measurement

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12252 Biopsy and autopsy fiber size variation result type

Distribution of the atrophic fibers

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17875 Pulmonary function test text

Other type of pulmonary function testing performed

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00723 APGAR ten minute score

Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12515 Dual X-ray absorptiometry distal forearm Z score

The Z score the for dual X-ray absorptiometry (DEXA) of the distal forearm

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00032 Race USA paternal category

Race(s) the participant/subject's father most closely identifies with

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12422 Pulmonary gas exchange end tidal transcutaneous average carbon dioxide value

The average value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12260 Biopsy and autopsy perivascular inflammation type

Evidence of vascular damage includes damaged vessels in association with perivascular inflammation and the presence of fibrin thrombi located within vascular spaces

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12429 Polysomnography sleep latency duration

Duration required by the participant/subject to transition from full wakefulness to sleep

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17965 Echocardiogram abnormal result comment text

Free text about echocardiogram results that are not normal

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11101 Pulmonary function test mouth apparatus type

Type of mouthpiece used for the pulmonary function test

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12326 Respiratory mechanical in-exsufflator pause duration

Value of the pause time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12202 Gastrointestinal therapy fundoplication indicator

Indicator whether the participant/subject has had fundoplication surgery

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12268 Immunohistochemical stain used muscle biopsy and autopsy type

Which immunohistochemical stains were used on muscle biopsy?

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12437 Polysomnography blood oxygen saturation mean non-REM sleep measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) during non-rapid eye movement (REM) sleep from the polysomnography being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12827 ECG axis direction indicator

Indicator of the direction of any axis deviation apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18856 Imaging ventricle abnormality other text

The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12485 Imaging other cortical abnormality indicator

Indicator of whether other cortical abnormalities of the brain are present

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00215 Living with person relationship type

Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays

Supplemental Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12177 Dual X-ray absorptiometry hip raw score

Dual X-ray absorptiometry (DEXA) Hip raw score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 301 - 325 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.