CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1038-C18853	C18853	Pulmonary gas exchange assessment performed other text	The free-text field related to 'Pulmonary gas exchange assessment performed location' specifying other text. The location where the gas exchange assessment was performed	Supplemental	Measures of Gas Exchange	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12433	C12433	Polysomnography apnea hypopnea index type REM event count	Count of rapid eye movement (REM) sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12241	C12241	Biochemical or genetic test name	Name of the biochemical or genetic test as performed on the specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1999-C18831	C18831	Tissue specimen section quantify other text	The free-text field related to 'Tissue specimen section quantify type' specifying other text. Type of quantification used in evaluating the sections taken from the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C12501	C12501	Imaging internal capsule type indicator	The condition of the internal capsule	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1054-C12172	C12172	Dual X-ray absorptiometry beam technique type	The type of beam technique used for Dual X-ray absorptiometry (DEXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12330	C12330	Respiratory manual cough assist use daily frequency	Frequency of daily use of the manual cough assist method (e.g. Heimlich style maneuver)	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1039-C12206	C12206	Gastrointestinal therapy medication type	Type(s) of medications taken by the participant/subject for her/his gastrointestinal (GI) therapy	Supplemental	Gastrointestinal Therapies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C10568	C10568	Imaging radio frequency coil channel count	Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12441	C12441	Polysomnography percent sleep time REM percent blood oxygen saturation value	Value representing the amount of rapid eye movement (REM) sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1054-C12181	C12181	Dual X-ray absorptiometry lumbar spine T score	Dual X-ray absorptiometry (DEXA) Lspine T score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1039-C12216	C12216	Gastrointestinal therapy feed formula dose	Dose, in mL, of formula that the participant/subject receives at each feeding for non-continuous feeding	Supplemental	Gastrointestinal Therapies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12449	C12449	Polysomnography end tidal carbon dioxide measurement grade	Grade of the end-tidal CO2 (ETCO2) measurements being reported	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18852	C18852	Respiratory oxygen administration method other text	The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1035-C12308	C12308	Pulmonary function test bronchodilator indicator	Whether the patient was taking bronchodilator during the time of testing	Supplemental	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12260	C12260	Biopsy and autopsy perivascular inflammation type	Evidence of vascular damage includes damaged vessels in association with perivascular inflammation and the presence of fibrin thrombi located within vascular spaces	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C17965	C17965	Echocardiogram abnormal result comment text	Free text about echocardiogram results that are not normal	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1054-C12189	C12189	Dual X-ray absorptiometry whole body total lean value	Percentage of lean whole body mass. Dual X-ray absorptiometry (DEXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1999-C12231	C12231	Laboratory name	Name of laboratory where assessment was performed	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12770	C12770	Electrophysiology long pre-exercise compound muscle action potential measurement	Compound muscle action potential (CMAP) measurement recorded pre- long exercise	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12727	C12727	Electrophysiology repetitive nerve postactivation area measurement	Measurement, in mVms, of the area of the postactivation being described at the time specified for the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1050-C17906	C17906	Specimen immunohistochemical stain use indicator	Indicator whether immunohistochemcial stains were used on the tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12395	C12395	Respiratory pressure support value	Value of the pressure support	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C12508	C12508	Imaging radio frequency coil function type	The function of the radio frequency (RF) coil used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12353	C12353	Respiratory intrapulmonary percussive ventilation or MetaNeb type	Type of intrapulmonary percussive ventilation or MetaNeb device used	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.