CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1842
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58651 Tissue specimen section count unknown indicator

Indicator that the count of tissue speciments is unknown

 Supplemental-Highly Recommended Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58650 Tissue specimen section thickness not known indicator

Indicator that the tissue specimen thickness is not known

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C52785 Woodcock Johnson III (WJ-III) - Handwriting letter formation error text

Text field describing letter formation errors, as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Supplemental Woodcock-Johnson III Test of Cognitive Abilities True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C52786 Woodcock Johnson III (WJ-III) - Handwriting line quality type

Type of quality of the subject/participant's handwriting, as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Supplemental Woodcock-Johnson III Test of Cognitive Abilities True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

 Supplemental Demographics False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12245 Symptom presentation type

Symptoms participant/ subject shows at presentation

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C54038 Woodcock Johnson III (WJ-III) - Education years schooled count

Count of number of years of schooling as related to the Woodcock Johnson III (WJ-III) tests of achievement

 Supplemental Woodcock-Johnson III Test of Cognitive Abilities True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53909 Trial numeric number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53956 Task of Executive Control (TEC) - Raw Score

Raw score, as part of Task of Executive Control (TEC)

 Supplemental Tasks of Executive Control (TEC) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53964 Task of Executive Control (TEC) - Variable Comparison Category

Variable comparison category, as part of Task of Executive Control (TEC)

 Supplemental Tasks of Executive Control (TEC) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53948 California Verbal Learning Test Childrens version (CVLT-C) - Misses total number

Total number of misses in List A Long-Delay Recognition trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53916 California Verbal Learning Test Childrens version (CVLT-C) - List A, trial total perseverations count

Total count of perseverations recited by the subject for List A for a given trial (Total P), as part of California Verbal Learning Test Children's version (CVLT-C)

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53924 California Verbal Learning Test Childrens version (CVLT-C) - List B item semantic cluster score

List B item semantic clustering score, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53932 California Verbal Learning Test Childrens version (CVLT-C) - End of Short-Delay Cued-Recall trial and start of Long-Delay Free-Recall trial delay duration

Duration of total delay (in minutes) between the end of Short-Delay Cued-Recall trial and start of Long-Delay Free-Recall trial (usually 20 minutes), as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw sco

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53940 California Verbal Learning Test Childrens version (CVLT-C) - Neither list phonemically similar words count

Count of neither phonemically similar recalls (PS) in List A Long-Delay Recognition trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53910 California Verbal Learning Test Childrens version (CVLT-C) - List A item response text

Text that captures List A item response given by the subject as a single word, as part of California Verbal Learning Test Children's version (CVLT-C)

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53957 Task of Executive Control (TEC) - T Score

T score, as part of Task of Executive Control (TEC)

 Supplemental Tasks of Executive Control (TEC) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53965 Task of Executive Control (TEC) - Predicted Raw Score

Predicted raw score, as part of Task of Executive Control (TEC)

 Supplemental Tasks of Executive Control (TEC) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53949 California Verbal Learning Test Childrens version (CVLT-C) - Discriminability raw score

Raw score for discriminability- accuracy of distinguishing target from distracter words on recognition testing, as part of California Verbal Learning Test Children's version (CVLT-C)

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53917 California Verbal Learning Test Childrens version (CVLT-C) - List A semantic cluster total score

Total score for List A semantic cluster, as part of California Verbal Learning Test Children's version (CVLT-C)

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53925 California Verbal Learning Test Childrens version (CVLT-C) - List B free recall trial correct words count

Total count of correct words recalled from the interference list - List B (Total C), as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53933 California Verbal Learning Test Childrens version (CVLT-C) - List A Long-Delay Recognition Trial items text

Text that lists all List A Long-Delay Recognition trial items in the order they appear on the CRF (45 items total), as part of California Verbal Learning Test Children's version (CVLT-C). Includes 15 items from List A+15 items from List B and + 15 items t

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53941 California Verbal Learning Test Childrens version (CVLT-C) - Neither list unrelated words count

Count of neither list unrelated recalls (UN) in List A Long-Delay Recognition trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53911 California Verbal Learning Test Childrens version (CVLT-C) - List A item response order number

List A item response number, as part of California Verbal Learning Test Children's version (CVLT-C). Blso used as a trial/list raw score

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 51 - 75 of 1842

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.