CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1050-C18616	C18616	Mitochondria abnormality location text	Text description of the location abnormality of observed in the mitochondria	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C18610	C18610	Imaging in plane resolution axis 2 measurement	Axis 2 of in-plane spatial resolution used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C18610	C18610	Imaging in plane resolution axis 2 measurement	Axis 2 of in-plane spatial resolution used in imaging acquisition	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C18611	C18611	Imaging field of view axis 2 measurement	Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C18611	C18611	Imaging field of view axis 2 measurement	Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1056-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1989-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C21668	C21668	ICD-10-CM code	Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1032-C10678	C10678	Employment full-time status	Status of participant/subject's current full-time employment	Supplemental	Social Status	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1020-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Hand Held Dynamometry	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1016-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1989-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Supplemental	Vital Signs	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1018-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Exploratory	Grip Strength	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1032-C00204	C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1997-C01028	C01028	Physical exam condition SNOMED CT code	Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Supplemental	Physical Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1032-C12607	C12607	Education level maternal USA type	Indicator of the highest level of education completed by the participant/subject's mother	Supplemental	Social Status	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1989-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1997-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1050-C12242	C12242	Biochemical or genetic test result value	Results of the biochemical or genetic test performed on the specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C10591	C10591	Imaging phase encode direction text	Text description of the phase encode direction used in imaging technique acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.