CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant/subject's medical history was taken

Supplemental Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant/subject's medical history was taken

Core Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Magnetic Resonance Spectroscopy (MRS) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental-Highly Recommended Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Physical Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12663 Family history member with medical condition count

Count of family members with history of medical condition

Supplemental Family History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C59019 Birth weight measurement

Measurement in kilograms of the weight of a neonate at birth

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12806 Gene protein variant or mutation name

The Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12805 Gene mRNA variant or mutation name

The Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12804 Gene cDNA variant or mutation name

The Human Genome Organisation (HUGO) variant or mutation nomenclature of the complementary deoxyribonucleic acid (cDNA) variant or mutation

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12803 Gene variant or mutation implications confirmed mRNA analysis indicator

Whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12802 Gene variant or mutation mRNA analysis performed indicator

Whether messenger ribonucleic acid (mRNA) analysis was performed

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12801 Gene point mutation nonsense variant codon type

Type of nonsense variant or point mutation

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12800 Gene missense nonsense variant or point mutation insertion deletion type

The insertion deletion type of the missense/nonsense variant or point mutation

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17890 Allele number one missense nonsense variant or point mutation subclass information type

Type of missense/nonsense variant or point mutation subclass information, first allele number one

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17893 Gene missense nonsense variant or point mutation location other text

Text about missense/nonsense variant or point mutation at locations other than the exon and intron

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17894 Gene missense nonsense variant or point mutation location intron text

Text about missense/nonsense variant or point mutation at the intron

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17889 Gene missense nonsense variant or point mutation location exon text

Text about missense/nonsense variant or point mutation at the exon

Supplemental Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 1 - 25 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.