CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1843
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00311 Birth weight report value

Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58651 Tissue specimen section count unknown indicator

Indicator that the count of tissue speciments is unknown.

Supplemental-Highly Recommended Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58650 Tissue specimen section thickness not known indicator

Indicator that the tissue specimen thickness is not known.

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C52785 Woodcock Johnson III (WJ-III) ? Handwriting letter formation error text

Text field describing letter formation errors, as part of the Woodcock Johnson III (WJ-III) tests of achievement.

Supplemental Woodcock-Johnson III Test of Cognitive Abilities Neuromuscular Diseases Neuromuscular Diseases (NMD)
C52786 Woodcock Johnson III (WJ-III) ? Handwriting line quality type

Type of quality of the subject/participant's handwriting, as part of the Woodcock Johnson III (WJ-III) tests of achievement.

Supplemental Woodcock-Johnson III Test of Cognitive Abilities Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement.

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12245 Symptom presentation type

Symptoms participant/ subject shows at presentation

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C54038 Woodcock Johnson III (WJ-III) - Education years schooled count

Count of number of years of schooling as related to the Woodcock Johnson III (WJ-III) tests of achievement.

Supplemental Woodcock-Johnson III Test of Cognitive Abilities Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53907 California Verbal Learning Test Childrens version (CVLT-C) - List A items text

Text that lists all List A items in the order they appear on the CRF , as part of California Verbal Learning Test Children's version (CVLT-C).

Supplemental California Verbal Learning Test - Children (CVLT-C) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53954 Language form administration ISO code other text

The free-text field related to 'Language form administration ISO code' specifying other text.

Supplemental Tasks of Executive Control (TEC) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53962 Task of Executive Control (TEC) - Mean Raw Score

Mean raw score, as part of Task of Executive Control (TEC).

Supplemental Tasks of Executive Control (TEC) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53938 California Verbal Learning Test Childrens version (CVLT-C) - List B non-shared words count

Count of recalls non-shared with List B (BS) in List A Long-Delay Recognition trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score.

Supplemental California Verbal Learning Test - Children (CVLT-C) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53946 California Verbal Learning Test Childrens version (CVLT-C) - Total intrusions for all free recall trials count

Total count of intrusions for all free recall trials, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a raw score.

Supplemental California Verbal Learning Test - Children (CVLT-C) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53914 California Verbal Learning Test Childrens version (CVLT-C) - List A, trial total correct words count

Total count of correct words recalled by the subject for List A for a given trial (Total C), as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score.

Supplemental California Verbal Learning Test - Children (CVLT-C) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53922 California Verbal Learning Test Childrens version (CVLT-C) - List B item response text

Text that captures List B item response given by the subject as a single word, as part of California Verbal Learning Test Children's version (CVLT-C).

Supplemental California Verbal Learning Test - Children (CVLT-C) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53930 California Verbal Learning Test Childrens version (CVLT-C) - Long-Delay Free-Recall Trial start time

Starting time of Long Delay Free Recall trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score.

Supplemental California Verbal Learning Test - Children (CVLT-C) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53908 California Verbal Learning Test Childrens version (CVLT-C) - List B items text

Text that lists all List B items in the order they appear on the CRF , as part of California Verbal Learning Test Children's version (CVLT-C).

Supplemental California Verbal Learning Test - Children (CVLT-C) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53955 Task of Executive Control (TEC) - Age Group Category

Category of the age group for the subject completing the examination, as part of Task of Executive Control (TEC).

Supplemental Tasks of Executive Control (TEC) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53963 Task of Executive Control (TEC) - Percent correct Score

Score of percent correct, as part of Task of Executive Control (TEC).

Supplemental Tasks of Executive Control (TEC) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53939 California Verbal Learning Test Childrens version (CVLT-C) - Neither list prototipical words count

Count of neitehr list prototipical (NP) recalls in List A Long-Delay Recognition trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score.

Supplemental California Verbal Learning Test - Children (CVLT-C) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53947 California Verbal Learning Test Childrens version (CVLT-C) - List A recognition hits count

Count of recognition hits in List A , as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a raw score.

Supplemental California Verbal Learning Test - Children (CVLT-C) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53915 California Verbal Learning Test Childrens version (CVLT-C) - List A, trial total intrusions count

Total count of intrusions recited by the subject for List A for a given trial (Total I), as part of California Verbal Learning Test Children's version (CVLT-C).

Supplemental California Verbal Learning Test - Children (CVLT-C) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53923 California Verbal Learning Test Childrens version (CVLT-C) - List B recall item response order number

List B item response number, as part of California Verbal Learning Test Children's version (CVLT-C).

Supplemental California Verbal Learning Test - Children (CVLT-C) Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 1 - 25 of 1843

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.