CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C00311	Birth weight report value	Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian	Supplemental	Prenatal and Perinatal History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth.	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C58651	Tissue specimen section count unknown indicator	Indicator that the count of tissue speciments is unknown.	Supplemental-Highly Recommended	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C58650	Tissue specimen section thickness not known indicator	Indicator that the tissue specimen thickness is not known.	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C52785	Woodcock Johnson III (WJ-III) ? Handwriting letter formation error text	Text field describing letter formation errors, as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Supplemental	Woodcock-Johnson III Test of Cognitive Abilities	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C52786	Woodcock Johnson III (WJ-III) ? Handwriting line quality type	Type of quality of the subject/participant's handwriting, as part of the Woodcock Johnson III (WJ-III) tests of achievement.	Supplemental	Woodcock-Johnson III Test of Cognitive Abilities	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C17396	Sex genotype type	The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement.	Supplemental	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12245	Symptom presentation type	Symptoms participant/ subject shows at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C54038	Woodcock Johnson III (WJ-III) - Education years schooled count	Count of number of years of schooling as related to the Woodcock Johnson III (WJ-III) tests of achievement.	Supplemental	Woodcock-Johnson III Test of Cognitive Abilities	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53907	California Verbal Learning Test Childrens version (CVLT-C) - List A items text	Text that lists all List A items in the order they appear on the CRF , as part of California Verbal Learning Test Children's version (CVLT-C).	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53954	Language form administration ISO code other text	The free-text field related to 'Language form administration ISO code' specifying other text.	Supplemental	Tasks of Executive Control (TEC)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53962	Task of Executive Control (TEC) - Mean Raw Score	Mean raw score, as part of Task of Executive Control (TEC).	Supplemental	Tasks of Executive Control (TEC)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53938	California Verbal Learning Test Childrens version (CVLT-C) - List B non-shared words count	Count of recalls non-shared with List B (BS) in List A Long-Delay Recognition trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score.	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53946	California Verbal Learning Test Childrens version (CVLT-C) - Total intrusions for all free recall trials count	Total count of intrusions for all free recall trials, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a raw score.	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53914	California Verbal Learning Test Childrens version (CVLT-C) - List A, trial total correct words count	Total count of correct words recalled by the subject for List A for a given trial (Total C), as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score.	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53922	California Verbal Learning Test Childrens version (CVLT-C) - List B item response text	Text that captures List B item response given by the subject as a single word, as part of California Verbal Learning Test Children's version (CVLT-C).	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53930	California Verbal Learning Test Childrens version (CVLT-C) - Long-Delay Free-Recall Trial start time	Starting time of Long Delay Free Recall trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score.	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53908	California Verbal Learning Test Childrens version (CVLT-C) - List B items text	Text that lists all List B items in the order they appear on the CRF , as part of California Verbal Learning Test Children's version (CVLT-C).	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53955	Task of Executive Control (TEC) - Age Group Category	Category of the age group for the subject completing the examination, as part of Task of Executive Control (TEC).	Supplemental	Tasks of Executive Control (TEC)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53963	Task of Executive Control (TEC) - Percent correct Score	Score of percent correct, as part of Task of Executive Control (TEC).	Supplemental	Tasks of Executive Control (TEC)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53939	California Verbal Learning Test Childrens version (CVLT-C) - Neither list prototipical words count	Count of neitehr list prototipical (NP) recalls in List A Long-Delay Recognition trial, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score.	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53947	California Verbal Learning Test Childrens version (CVLT-C) - List A recognition hits count	Count of recognition hits in List A , as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a raw score.	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53915	California Verbal Learning Test Childrens version (CVLT-C) - List A, trial total intrusions count	Total count of intrusions recited by the subject for List A for a given trial (Total I), as part of California Verbal Learning Test Children's version (CVLT-C).	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C53923	California Verbal Learning Test Childrens version (CVLT-C) - List B recall item response order number	List B item response number, as part of California Verbal Learning Test Children's version (CVLT-C).	Supplemental	California Verbal Learning Test - Children (CVLT-C)	True	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.