CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 1106
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11101 Pulmonary function test mouth apparatus type

Type of mouthpiece used for the pulmonary function test

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18848 Respiratory support positive pressure device delivery method other text

The free-text field related to 'Respiratory support positive pressure device delivery method type' specifying other text. Type of non-invasive, positive pressure delivery method supported by the device

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18814 Spectroscopy water suppression other text

The free-text field related to 'Spectroscopy water suppression type' specifying other text. Indicator of water suppression method used, if any, for the spectroscopy scan being reported

Supplemental Magnetic Resonance Spectroscopy (MRS) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12724 Electrophysiology repetitive nerve postactivation elapsed time duration

Interval, in minutes, elapsed after nerve stimulation, at which time postactivation data are being recorded for the repetitive nerve study being recorded

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12177 Dual X-ray absorptiometry hip raw score

Dual X-ray absorptiometry (DEXA) Hip raw score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10590 Imaging interpolation indicator

Whether the k-space data were interpolated before applying Fourier transform

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12455 Polysomnography transcutaneous carbon dioxide measurement grade

Grade of the transcutaneous CO2 (TcCO2) measurements being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18844 Respiratory medication nebulized other text

The free-text field related to 'Respiratory medication nebulized type' specifying other text. Type of the medication(s) nebulized

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12247 Biopsy and Autopsy tissue collection method type

The type of method used for collection of the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12221 Gastrointestinal therapy water flush dose

Dose, with unit of measurement, of water used to flush the participant/subject's feeding tube, if applicable

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12315 Pulmonary function forced vital capacity leak indicator

Whether or not there was a leak during exhalation in any trial for forced vital capacity (FVC)

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12376 Respiratory positive pressure initiation age value

Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, positive pressure device

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12401 Respiratory oxygen flow rate

The flow rate value of supplemental oxygen

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12918 Cardiovascular Holter exam maximum heart rate duration

Duration of maximum heart rate recorded during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12732 Needle electromyography motor unit action potential duration

The duration of the motor unit action potential during needle electromyography

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12335 Respiratory postural drainage use frequency

Frequency of postural drainage use

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12185 Dual X-ray absorptiometry proximal femur Z Score

Dual X-ray absorptiometry (DEXA) proximal femur Z score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10964 Imaging eddy current induced spectral distortion correction indicator

Indicator as to whether image post-processing has included co-registering to b=0 image and correction for subject motion and eddy current induced distortion (affine transformation)

Supplemental Magnetic Resonance Spectroscopy (MRS) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12463 Polysomnography heart rate REM sleep value

Value, in beats per minute, of the selected heart rate (HR) measurement during rapid eye movement (REM) sleep

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17883 Gastrointestinal therapy water flush status

The status of whether water was used to flush the participant/subject's feeding tube, if applicable

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12385 Respiratory tracheostomy tube cuffed indicator

Indicator of whether or not the tracheostomy tube that the participant/subject uses has cuffs

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01704 Pregnancy test specimen type

Type of specimen collected to perform the pregnancy test

Supplemental Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12414 Pulmonary blood gas pH value

The numeric value of the blood gas pH measurement

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12740 Electrophysiology neuromuscular jitter activation technique type

The activation technique used for the neuromuscular jitter test

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12343 Respiratory lung volume recruitment inhale time value

Value for the inhale time setting for the lung volume recruitment device

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 151 - 175 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.