CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12891 Echocardiogram right ventricle function status

The ability of the right ventricle to perform its regular functions normally

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12289 Tissue specimen section quantify type

Type of quantification used in evaluating the sections taken from the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12490 Imaging ventricle abnormal indicator

Indicator of whether the ventricles appear normal or abnormal in the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12176 Dual energy X-ray absorptiometry participant age value

Age of the participant/subject when the Dual X-ray absorptiometry (DEXA) was done

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10589 Imaging shot count

The number of shots used in the imaging echo-planner acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18847 Respiratory support device other text

the free-text field related to 'Respiratory support device type' specifying other text. Type of respiratory support or assisted ventilation device used

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12323 Respiratory mechanical in-exsufflator exhale pressure value

Value of the exhale pressure setting for the mechanical in-exsufflator used by the participant/subject

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12434 Polysomnography apnea hypopnea index type non-REM event count

Count of non-rapid eye movement (REM) sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12899 Echocardiogram right ventricle end diastolic volume index measurement

Calculated from end diastolic volume over body surface area - right ventricle

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17908 Tissue specimen intraepidermal nerve fiber statistics other report text

Text description of any other intraepidermal nerve fiber (IENF) statistics that were reported for the tissue specimen by the pathology laboratory

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12498 Imaging white matter T2 abnormal indicator

Indicator of whether the white matter appears normal or abnormal on T2 weighted images

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12184 Dual X-ray absorptiometry proximal femur T score

Dual X-ray absorptiometry (DEXA) proximal femur T score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12610 Death location type

Type of location where the participant/subject died

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12220 Gastrointestinal therapy estimate caloric intake value

Value of the participant/subject's caloric intake received through formula

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10729 Echocardiogram left atrial antero - posterior dimension measurement

Measurements of the dimensions of the left atrial antero - posterior measured by the echocardiogram

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10683 Imaging T2 weighted spin-echo acquired indicator

Indicator as to whether or not T2-weighted spin-echo data acquired for spatially registering DWI data and performing spatial distortion (B0) correction

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12400 Respiratory oxygen administration method name

Name of method of administration of supplemental oxygen used

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12442 Polysomnography percent sleep time non-REM percent blood oxygen saturation value

Value representing the amount of non-rapid eye movement (REM) sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12247 Biopsy and Autopsy tissue collection method type

The type of method used for collection of the tissue specimen

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12907 Echocardiogram right ventricle non-compaction status

Status of non-compaction in the right ventricle as assessed by echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12506 Imaging eye abnormality type

The type of eye abnormalities

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12192 Dual X-ray absorptiometry whole body bone mineral density value

The amount of bone mineral density (BMD)for dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12535 Gastrointestinal therapy feed schedule end date

Date on which the feeding schedule for gastrointestinal therapy ended, if applicable

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 101 - 125 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.