CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1037-C12356	C12356	Respiratory intrapulmonary percussive ventilation or MetaNeb Session Time	Time the intrapulmonary percussive ventilation or MetaNeb device was in use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C17949	C17949	Spectroscopy water reference data acquire averages count	Count of averages of water reference data, if any, acquired	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12518	C12518	Endomysial fibrosis severity status	Severity of the Endomysial fibrosis muscle diagnostic abnormalities	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C17880	C17880	Respiratory support ventilation device other model name	Name of other support ventilation device used by the participant/subject	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12697	C12697	Electrophysiology motor nerve latency value	The length of time needed for the electrical impulse to travel between the stimulation and recording sites measured during the motor nerve conduction study	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1048-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Supplemental	Fat Aspirate Tissue Specimens	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Supplemental-Highly Recommended	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1999-C17908	C17908	Tissue specimen intraepidermal nerve fiber statistics other report text	Text description of any other intraepidermal nerve fiber (IENF) statistics that were reported for the tissue specimen by the pathology laboratory	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C12497	C12497	Imaging cerebellum abnormality type	The type of abnormality in the cerebellum on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1089-C12610	C12610	Death location type	Type of location where the participant/subject died	Supplemental	Death Report	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12326	C12326	Respiratory mechanical in-exsufflator pause duration	Value of the pause time setting for the mechanical in-exsufflator	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1039-C12202	C12202	Gastrointestinal therapy fundoplication indicator	Indicator whether the participant/subject has had fundoplication surgery	Supplemental	Gastrointestinal Therapies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12437	C12437	Polysomnography blood oxygen saturation mean non-REM sleep measurement	Measurement, in percent, of the mean blood oxygen saturation (Sp02) during non-rapid eye movement (REM) sleep from the polysomnography being reported	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12247	C12247	Biopsy and Autopsy tissue collection method type	The type of method used for collection of the tissue specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C12505	C12505	Imaging eye abnormality indicator	Indicator of whether eye abnormalities are present	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1054-C12177	C12177	Dual X-ray absorptiometry hip raw score	Dual X-ray absorptiometry (DEXA) Hip raw score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12334	C12334	Respiratory manual percussion session duration	Time of manual percussion use per session	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1039-C12210	C12210	Gastrointestinal therapy feed type	Type of feeding received by the participant/subject	Supplemental	Gastrointestinal Therapies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C10590	C10590	Imaging interpolation indicator	Whether the k-space data were interpolated before applying Fourier transform	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12445	C12445	Polysomnography blood oxygen saturation drop hour REM sleep count	Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during rapid eye movement (REM) sleep time	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18848	C18848	Respiratory support positive pressure device delivery method other text	The free-text field related to 'Respiratory support positive pressure device delivery method type' specifying other text. Type of non-invasive, positive pressure delivery method supported by the device	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1035-C12304	C12304	Pulmonary function test equipment model name	Name of model of the pulmonary function test equipment	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12256	C12256	Biopsy and autopsy eccentric nuclei estimated fibers percent value	Estimated percent of fibers in eccentric nuclei	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1054-C12185	C12185	Dual X-ray absorptiometry proximal femur Z Score	Dual X-ray absorptiometry (DEXA) proximal femur Z score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1039-C12221	C12221	Gastrointestinal therapy water flush dose	Dose, with unit of measurement, of water used to flush the participant/subject's feeding tube, if applicable	Supplemental	Gastrointestinal Therapies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.