CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

Displaying 101 - 125 of 1842

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C12850	Cardiac MRI left ventricle non-compaction ratio value	Ratio of noncompacted left ventricle myocardial thickness to compacted left ventricle myocardial thickness at the end of diastole	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12720	Electrophysiology repetitive nerve stimulation study preactivation area measurement	Measurement, in mVms, of the area of the preactivation being described for the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12278	Specimen histochemical stain diagnostic abnormality type	Types of diagnostic abnormalities noted on the histochemical stains performed on the tissue specimen	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12508	Imaging radio frequency coil function type	The function of the radio frequency (RF) coil used	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12388	Respiratory ventilation mode bi-level positive pressure type	Type of bi-level positive pressure ventilation used by the support ventilation device	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12602	Discharge post acute location	Location, post-acute discharge, at which participant/subject is currently staying	Supplemental	Social Status	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12831	ECG atrioventricular block first degree status	Status of first degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12346	Respiratory lung volume recruitment breath per cycle count	Count of the number of breaths per cycle of lung volume recruitment device use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12227	Postmortem interval for autopsy specimen value	Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12289	Tissue specimen section quantify type	Type of quantification used in evaluating the sections taken from the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12771	Electrophysiology long exercise test post-exercise compound muscle action potential time	The time intervals used to measure compound muscle action potential (CMAP) during pre-exercise for the long exercise test	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12939	Cardiovascular Holter exam abnormality significance type	An indication if the abnormality observed during the Holter examination is clinically significant	Supplemental	Holter Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12860	Cardiac MRI intracardiac finding type	Types of intracardial findings observed by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12728	Needle electromyography electrode type	Type of electrode used for the needle electromyography	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C17907	Specimen histochemical stain diagnostic abnormality text	Text description of details of the specified diagnostic abnormalities on the histochemical stains	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C17939	Scanner manufacturer other name	Name of the tissue scanner (e.g. Magnetic Resonance Imaging or Computerized Tomography) manufacturer if not one of the listed possibilities	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12396	Respiratory supplemental oxygen value	Value of the flow rate of supplemental oxygen	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12509	Imaging radio frequency coil category	Type of radio frequency (RF) coil(s) category used for the body part scanned	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C18861	Health insurance private group other text	The free-text field related to 'Health insurance private group type' specifying other text. Type of private or group health insurance, if any, in which the participant/subject is currently enrolled	Supplemental	Social Status	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12354	Respiratory intrapulmonary percussive ventilation or MetaNeb frequency	Frequency of intrapulmonary percussive ventilation or MetaNeb use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Supplemental-Highly Recommended	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C17908	Tissue specimen intraepidermal nerve fiber statistics other report text	Text description of any other intraepidermal nerve fiber (IENF) statistics that were reported for the tissue specimen by the pathology laboratory	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C08018	Surgery age value	Age of the participant/subject at the time of the selected surgical procedure	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C18879	Cardiovascular Holter predominant heart rhythm other text	The free-text field related to 'Cardiovascular Holter predominant heart rhythm type' specifying other text. Heart rhythm the participant/subject exhibited the majority of the time during the Holter examination	Supplemental	Holter Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12736	Needle electromyography motor unit action potential activation type	The activation of the motor unit action potential measure during needle electromyography	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.