CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 76 - 100 of 1842
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C12671 Surgery lifetime total count

Total number of surgeries the participant/subject has undergone in his/her lifetime

Supplemental Surgical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12672 Surgical or therapeutic procedure ventilated indicator

Whether the participant/subject was ventilated during the surgical or therapeutic procedure

Supplemental Surgical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00003 Postnatal age value

Time elapsed after birth of the participant/subject

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12940 Birth head circumference value

Circumferential measurement of the head at the widest point taken at birth - the distance from above the eyebrows and ears and around the back of the head

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12903 Echocardiogram right ventricle end systolic volume index value

Calculated from end systolic volume over body surface area - right ventricle

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12502 Imaging anterior commissure type indicator

The condition of the anterior commissure

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12172 Dual X-ray absorptiometry beam technique type

The type of beam technique used for Dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10735 Echocardiogram left ventricular hypertrophy status

Status of whether the echocardiogram shows that the participant/subject has left ventricular hypertrophy

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12330 Respiratory manual cough assist use daily frequency

Frequency of daily use of the manual cough assist method (e.g. Heimlich style maneuver)

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12206 Gastrointestinal therapy medication type

Type(s) of medications taken by the participant/subject for her/his gastrointestinal (GI) therapy

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12441 Polysomnography percent sleep time REM percent blood oxygen saturation value

Value representing the amount of rapid eye movement (REM) sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12911 Echocardiogram systolic pressure estimation type

Technique used to estimate the right ventricular systolic pressure

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17925 Imaging contrast agent dose

Dosage of the contrast agent used

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12181 Dual X-ray absorptiometry lumbar spine T score

Dual X-ray absorptiometry (DEXA) Lspine T score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10751 Echocardiogram tissue doppler mitral annulus E' velocity measurement

Tissue doppler mitral annulus E' velocity measured with echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12216 Gastrointestinal therapy feed formula dose

Dose, in mL, of formula that the participant/subject receives at each feeding for non-continuous feeding

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10933 Imaging lesion found type

Type of lesions found within the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12449 Polysomnography end tidal carbon dioxide measurement grade

Grade of the end-tidal CO2 (ETCO2) measurements being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18852 Respiratory oxygen administration method other text

The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Vital Signs Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

Supplemental Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12269 Biopsy and autopsy immunohistochemical immunofluorescence assays performed

List of stains used

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17965 Echocardiogram abnormal result comment text

Free text about echocardiogram results that are not normal

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12189 Dual X-ray absorptiometry whole body total lean value

Percentage of lean whole body mass. Dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12868 Echocardiogram left ventricular trabeculation ratio indicator

Whether any of the trabeculations are more than 2:1 ratio, trabecular layer to compact layer as assessed by echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 76 - 100 of 1842

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.