CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1106
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08018 Surgery age value

Age of the participant/subject at the time of the selected surgical procedure

Supplemental Surgical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18879 Cardiovascular Holter predominant heart rhythm other text

The free-text field related to 'Cardiovascular Holter predominant heart rhythm type' specifying other text. Heart rhythm the participant/subject exhibited the majority of the time during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12736 Needle electromyography motor unit action potential activation type

The activation of the motor unit action potential measure during needle electromyography

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event

Core Family History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17948 Scanner magnetic field other strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported, if unlisted

Supplemental Magnetic Resonance Spectroscopy (MRS) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12276 Biopsy and autopsy mitochondria abnormality type

Type of mitochondria abnormality in muscle biopsy

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12404 Respiratory oxygen use schedule daily hours value

Value of the number of hours of supplemental oxygen use per day

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Supplemental Fat Aspirate Tissue Specimens Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12362 Respiratory other airway clearance method session time

Time it takes per session for the participant/subject to use the other airway clearance method

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12744 Electrophysiology neuromuscular jitter mean consecutive difference abnormal count

Count of pairs/endplates with abnormal mean consecutive difference (MCD) recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11099 Pulmonary function test type

Type of pulmonary function testing performed

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12526 Biopsy and autopsy type 1 predominance fiber percentage value

Percentage of Type 1 predominance fiber present

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18839 Respiratory postural drainage use other text

The free-text field related to 'Respiratory postural drainage use frequency' specifying other text. Frequency of postural drainage use

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12703 Electrophysiology sensory nerve segment length measurement

The sensory nerve segment length measured during the sensory nerve conduction study

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

Supplemental Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10682 Imaging anatomic site

Type of body part or anatomy scanned in the imaging study

Supplemental Magnetic Resonance Spectroscopy (MRS) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12370 Respiratory support device type

Type of respiratory support or assisted ventilation device used

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12755 Electrophysiology Valsalva ratio

The Valsalva ratio measured during autonomic function testing

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10877 Holter exam heart block episode type

Type of episode(s) of heart block assessed during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12842 Cardiac MRI ventricle end diastolic volume index value

Value of the selected ventricle's end diastolic volume measurement divided by the participant/subject's body surface area in square meters

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12712 Electrophysiology blink reflex test R1 latency value

Duration of R1 latency in the blink reflex test

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12237 Specimen overall interpretation status

Status of the overall assessment of the specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12380 Respiratory negative pressure initiation age value

Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, negative pressure device

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 51 - 75 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.