CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 401 - 425 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17885 Gastrointestinal therapy other feed tube text

Text identification of unlisted tube type through which the participant/subject receives therapeutic tube feedings

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12483 Imaging cortex-polymicrogyria indicator

Indicator of whether a developmental malformation of the human brain characterized by an excessive number of small convolutions (gyri) on the surface of the brain is present

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12463 Polysomnography heart rate REM sleep value

Value, in beats per minute, of the selected heart rate (HR) measurement during rapid eye movement (REM) sleep

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12416 Pulmonary blood gas partial pressure oxygen value

The numeric value of the blood gas partial pressure of oxygen (P02) in the blood

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12833 ECG atrioventricular block third degree complete status

Status of third degree or complete atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17922 Dual X-ray absorptiometry past corticosteroid use indicator

Whether or not the participant has taken corticosteroids in the past during Dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12291 Tissue specimen counting threshold type

Type of threshold for counting in the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12491 Imaging ventricle abnormality type

The type of abnormality in the ventricles on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12320 Respiratory mechanical in-exsufflator device use frequency

Frequency of use of the mechanical in-exsufflator by the participant/subject

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12424 Pulmonary gas exchange highest end tidal transcutaneous carbon dioxide value

The highest pressure of the end tidal CO2 (ETCO2) or transcutaneous CO2 (TCCO2) check while the participant/subject is sleeping

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12431 Polysomnography apnea hypopnea index type

Type of Apnea-Hypopnea Index (AHI) event for which results are being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18836 Respiratory mechanical in-exsufflator device use other text

The free-text field related to 'Respiratory mechanical in-exsufflator device use frequency' specifying other text. Frequency of use of the mechanical in-exsufflator by the participant/subject

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17897 Histological finding other comment text

Text describing the participant's comments about the histological findings

Supplemental Fat Aspirate Tissue Specimens Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Magnetic Resonance Spectroscopy (MRS) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12367 Respiratory airway clearance medication daily frequency

Value of the daily frequency of usage of the airway clearance medication

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12752 Electrophysiology heart rate variability value

The heart rate variability with deep breathing measured during autonomic function testing

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18844 Respiratory medication nebulized other text

The free-text field related to 'Respiratory medication nebulized type' specifying other text. Type of the medication(s) nebulized

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12708 Electrophysiology H-reflex latency right value

The H-reflex duration of latency for the right side of the body

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11101 Pulmonary function test mouth apparatus type

Type of mouthpiece used for the pulmonary function test

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12376 Respiratory positive pressure initiation age value

Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, positive pressure device

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12335 Respiratory postural drainage use frequency

Frequency of postural drainage use

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12760 Electrophysiology quantitative sweat function proximal leg measurement

The amount of sweat collected on the proximal leg

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17905 Biopsy and autopsy abnormal storage material text

Text describing biopsy or autopsy material that has been stored abnormally

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 401 - 425 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.