CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1038-C12412	C12412	Pulmonary gas exchange end tidal transcutaneous carbon dioxide value	The value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check	Supplemental	Measures of Gas Exchange	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12747	C12747	Electrophysiology motor unit number estimation surface motor unit action potential average value	Average surface motor unit action potentials (sMUAPs), estimated using the designated MUNE (motor unit number estimation) technique	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C18858	C18858	Imaging pons abnormality other text	The free-text field related to 'Imaging pons abnormality type' specifying other text. The type of abnormality in the pons on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12529	C12529	Biopsy and autopsy ragged red fibers estimated count	Ragged red fibers estimated number	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12706	C12706	Electrophysiology sensory nerve amplitude measurement	The amplitude measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1046-C12690	C12690	Gene name	Name of the gene analyzed	Supplemental	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C12487	C12487	Imaging other cortical abnormality site type	The anatomical site(s) of the other cortical abnormality	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C17878	C17878	Polysomnography limited type text	Text description of the polysomnography being reported if it is not a full polysomnography	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1038-C12420	C12420	Pulmonary gas exchange oxygen saturation less 90 percent value	The percent of time the participant/subject's oxygen saturation level (SpO2) is less then 90 percent while the participant/subject is sleeping	Supplemental	Measures of Gas Exchange	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12427	C12427	Polysomnography study start time	Time at which the sleep study began	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C17903	C17903	Biopsy and autopsy abnormalities on immunohistochemistry text	Text regarding abnormalities on immunohistochemistry	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12715	C12715	Electrophysiology repetitive nerve stimulation study stimulation rate value	Value, in Hz, of the stimulation rate used in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C12495	C12495	Imaging pons abnormality type	The type of abnormality in the pons on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12324	C12324	Respiratory mechanical in-exsufflator inhale duration	Value of the inhale time setting for the mechanical in-exsufflator	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1039-C12199	C12199	Gastrointestinal therapy feed method type	Type of method by which the participant/subject receives therapeutic feedings	Supplemental	Gastrointestinal Therapies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12435	C12435	Polysomnography blood oxygen saturation mean total sleep measurement	Measurement, in percent, of the mean blood oxygen saturation (Sp02) for total sleep from the polysomnography being reported	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1999-C12226	C12226	Specimen source type	Type of specimen collection source	Supplemental-Highly Recommended	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12766	C12766	Electrophysiology short pre-exercise compound muscle action potential measurement	The compound muscle action potential (CMAP) values measured at the pre-exercise intervals	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12723	C12723	Electrophysiology repetitive nerve activation duration	Duration, in sec, of the activation technique used in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12332	C12332	Respiratory manual percussion use frequency	Frequency of use of manual percussion therapy	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1039-C12208	C12208	Gastrointestinal therapy nutrition supplement type	Type(s) of nutritional supplement(s) being taken by the participant/subject	Supplemental	Gastrointestinal Therapies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12443	C12443	Polysomnography percent awake time percent blood oxygen saturation value	Value representing the amount of waking time, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18846	C18846	Respiratory other airway clearance method use other text	The free-text field related to 'Respiratory other airway clearance method use frequency' specifying other text. Frequency of use of other airway clearance methods	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1999-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12731	C12731	Needle electromyography motor unit action potential area measurement	The area value of the motor unit action potential (MUAP) measure during needle electromyography	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.