CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 326 - 350 of 1106
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12457 Polysomnography transcutaneous carbon dioxide REM sleep value

Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during rapid eye movement (REM) sleep

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18832 Tissue specimen section quantify volume normalize other text

The free-text field related to 'Tissue specimen section quantify volume normalize type' specifying other text. Type of method used to normalize the volume of the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12317 Pulmonary function forced vital capacity early termination indicator

Whether or not there was early termination with a steep cutoff during the trials for forced vital capacity (FVC)

 Supplemental-Highly Recommended Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

 Core Medical History of NMD False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12207 Gastrointestinal therapy take nutrition supplement indicator

Indicator whether the participant/subject is taking nutritional supplements

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18845 Respiratory intrapulmonary percussive ventilation cup liquid other text

The free-text field related to 'Respiratory intrapulmonary percussive ventilation cup liquid type' specifying other text. Type of liquid in the intrapulmonary percussive ventilation cup

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12465 Polysomnography heart rate awake value

Value, in beats per minute, of the selected heart rate (HR) measurement during wakefulness

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12253 Biopsy and autopsy atrophy or hyportrophy fiber shape type

Atrophic/ hypertrophic fiber shape

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12425 Polysomnography study date

Date on which the polysomnography (sleep study) being reported was performed

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12182 Dual X-ray absorptiometry lumbar spine Z score

Dual X-ray absorptiometry (DEXA) Lspine Z score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12217 Gastrointestinal therapy continuous feed formula rate

Rate, in mL/hr, at which the participant/subject receives formula if receiving continuous feeding

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12322 Respiratory mechanical in-exsufflator inhale pressure value

Value of the inhale pressure setting for the mechanical in-exsufflator

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12261 Biopsy and autopsy inflammatory cell type

Type of inflammatory cells identified

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12433 Polysomnography apnea hypopnea index type REM event count

Count of rapid eye movement (REM) sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12190 Dual X-ray absorptiometry whole body total fat value

Percentage of total body fat for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12533 Gastrointestinal therapy daily feed value

Number of times per day that the participant/subject receives feedings

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12478 Imaging cortex-pachygyria indicator

Indicator of whether cortex-pachygyria are found within the image studies

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10964 Imaging eddy current induced spectral distortion correction indicator

Indicator as to whether image post-processing has included co-registering to b=0 image and correction for subject motion and eddy current induced distortion (affine transformation)

 Supplemental Diffusion Tensor Imaging (DTI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12411 Pulmonary gas exchange oxygen saturation value

The value of the oxygen saturation (SpO2) check

 Supplemental Measures of Gas Exchange False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12330 Respiratory manual cough assist use daily frequency

Frequency of daily use of the manual cough assist method (e.g. Heimlich style maneuver)

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12269 Biopsy and autopsy immunohistochemical immunofluorescence assays performed

List of stains used

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10777 Electrophysiology study type

Type of electrophysiology study conducted

 Supplemental Electrophysiology False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12828 ECG atrial enlargement right status

Status of right atrial enlargement present or absent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12441 Polysomnography percent sleep time REM percent blood oxygen saturation value

Value representing the amount of rapid eye movement (REM) sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 326 - 350 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.