CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C12261	Biopsy and autopsy inflammatory cell type	Type of inflammatory cells identified	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C18877	Echocardiogram systolic pressure estimation other text	The free-text field related to 'Echocardiogram systolic pressure estimation type' specifying other text. Technique used to estimate the right ventricular systolic pressure	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12402	Respiratory oxygen use frequency	Frequency of use of supplemental oxygen	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12423	Pulmonary gas exchange end tidal transcutaneous carbon dioxide above 50 mmHg value	The percent of time the participant/subject's ETCO2 or transcutaneous CO2 (TCCO2) pressure is above 50 mmHg	Supplemental	Measures of Gas Exchange	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C17928	Cardiac MRI myocardial scar anatomic site	Where myocardial scar was/was not detected	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12450	Polysomnography end tidal carbon dioxide total sleep value	Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during total sleep	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12869	Echocardiogram left ventricular trabeculation location type	Position of the trabeculation(s) in the left ventricular chamber as assessed by echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12360	Respiratory other airway clearance method use frequency	Frequency of use of other airway clearance methods	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12538	Imaging fast indicator	Indicator of whether or not fast imaging was used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12310	Pulmonary function complete exhalation indicator	Whether the complete amount of air was exhaled from the participant/subject	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C11099	Pulmonary function test type	Type of pulmonary function testing performed	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12792	Gene whole deletion indicator	Whether the entire gene was deleted	Supplemental	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12269	Biopsy and autopsy immunohistochemical immunofluorescence assays performed	List of stains used	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C10777	Electrophysiology study type	Type of electrophysiology study conducted	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12828	ECG atrial enlargement right status	Status of right atrial enlargement present or absent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C18837	Respiratory manual cough assist use other text	The free-text field related to 'Respiratory manual cough assist use frequency' specifying other text. Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12203	Gastrointestinal therapy fundoplication date	Date on which the participant/subject had fundoplication surgery	Supplemental	Gastrointestinal Therapies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12458	Polysomnography transcutaneous carbon dioxide non-REM sleep value	Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during non-rapid eye movement (REM) sleep	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12888	Echocardiogram right ventricle ejection fraction measurement	Fraction of blood pumped out of the right ventricles with each heart beat measured with echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12368	Respiratory airway clearance medication delivery method type	Type of drug delivery method the participant/subject uses for the airway clearance medication	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12318	Pulmonary function forced vital capacity peak flow indicator	Whether or not there was a clearly defined peak flow during any of the trials for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12836	ECG left anterior hemiblock status	Status of left anterior hemiblock apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12212	Gastrointestinal therapy feed duration	Duration of feedings received by the participant/subject	Supplemental	Gastrointestinal Therapies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12232	Laboratory director name	Name of laboratory director where assessment was performed	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C17877	Polysomnography end time clock type	Type of clock used to record the time at which the sleep study ended	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.