CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 1106

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1055-C17798	C17798	Imaging contrast agent name	Name of imaging contrast agent used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1020-C17790	C17790	Dynamometry hand held time	Time the hand held dynamometry was performed	Supplemental	Hand Held Dynamometry	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C17811	C17811	Imaging phase partial Fourier value	Value of the phase partial Fourier ratio, if used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1020-C10864	C10864	Dynamometry hand held muscle test performed indicator	Indicator of whether the hand held dynamometry testing was done	Supplemental	Hand Held Dynamometry	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1016-C10970	C10970	Manual muscle testing date and time	Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C17793	C17793	Imaging diffusion fourth b value	Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1034-C17872	C17872	Family history medical condition text	Specification of other disease that a family member or ancestor of the participant/subject has had a history of a medical condition or health related event	Supplemental	Family History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C12671	C12671	Surgery lifetime total count	Total number of surgeries the participant/subject has undergone in his/her lifetime	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1091-C12603	C12603	Birth length value	Measurement of the participant's/subject's length at birth	Supplemental	Prenatal and Perinatal History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C12672	C12672	Surgical or therapeutic procedure ventilated indicator	Whether the participant/subject was ventilated during the surgical or therapeutic procedure	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1091-C00003	C00003	Postnatal age value	Time elapsed after birth of the participant/subject	Supplemental	Prenatal and Perinatal History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1091-C12940	C12940	Birth head circumference value	Circumferential measurement of the head at the widest point taken at birth - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Prenatal and Perinatal History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1050-C18828	C18828	Histochemical stains used other text	The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen	Supplemental-Highly Recommended	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C17940	C17940	Spectroscopy geometry voxel slice size anterior posterior value	Value, in mm, of voxel or slice anterior-posterior size for the spectroscopy scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12398	C12398	Respiratory support schedule daily hour value	Value of the number of hours of daily ventilation device use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C12537	C12537	Imaging fat signal suppressor used method type	Type of method used to suppress fat signal in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1048-C12227	C12227	Postmortem interval for autopsy specimen value	Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected	Supplemental	Fat Aspirate Tissue Specimens	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12356	C12356	Respiratory intrapulmonary percussive ventilation or MetaNeb Session Time	Time the intrapulmonary percussive ventilation or MetaNeb device was in use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C17949	C17949	Spectroscopy water reference data acquire averages count	Count of averages of water reference data, if any, acquired	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12518	C12518	Endomysial fibrosis severity status	Severity of the Endomysial fibrosis muscle diagnostic abnormalities	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C17880	C17880	Respiratory support ventilation device other model name	Name of other support ventilation device used by the participant/subject	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12697	C12697	Electrophysiology motor nerve latency value	The length of time needed for the electrical impulse to travel between the stimulation and recording sites measured during the motor nerve conduction study	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1048-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Supplemental	Fat Aspirate Tissue Specimens	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12364	C12364	Respiratory airway clearance medication name	Name of the airway clearance medication used by the participant/subject	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

Displaying 26 - 50 of 1106

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.