CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 26 - 50 of 1842
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08512 36-item Short Form Health Survey (SF-36) - Health limited bathing dressing score

Score of surveyee-reported limited bathing or dressing due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08520 36-item Short Form Health Survey (SF-36) - Interfered social activities physical emotional problems score

Score of interfered normal social activities with family, friends, neighbors, or groups due to physical health or emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08529 36-item Short Form Health Survey (SF-36) - Times worn out score

Score of times feeling worn out during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08521 36-item Short Form Health Survey (SF-36) - Bodily pain score

Score of bodily pain during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08530 36-item Short Form Health Survey (SF-36) - Times happy score

Score of times being a happy person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08506 36-item Short Form Health Survey (SF-36) - Health limited climbing several stairs score

Score of surveyee-reported limited climbing several flights of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08514 36-item Short Form Health Survey (SF-36) - Less accomplished physical health indicator

Indicator for surveyee-reported less accomplishment as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08522 36-item Short Form Health Survey (SF-36) - Pain interfere work score

Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17807 Imaging parallel acquisition details text

Text description of any additional details about the parallel acquisition used, if any, in the MRI sequence being reported

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

Exploratory Grip Strength Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10872 Dynamometry hand held no result reason

Reason why there was no hand held dynamometry result for the muscle

Supplemental Hand Held Dynamometry Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08516 36-item Short Form Health Survey (SF-36) - Difficulty work activities physical health indicator

Indicator for surveyee-reported difficulty performing work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17790 Dynamometry hand held time

Time the hand held dynamometry was performed

Supplemental Hand Held Dynamometry Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08533 36-item Short Form Health Survey (SF-36) - Sick easier score

Score of how true or false surveyee perceived the statement: I seem to get sick a little easier than other people, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08517 36-item Short Form Health Survey (SF-36) - Cut time on work activities emotional problems indicator

Indicator for surveyee-reported cut down time on work or other activities as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08526 36-item Short Form Health Survey (SF-36) - Times calm peaceful score

Score of times feeling calm and peaceful during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08534 36-item Short Form Health Survey (SF-36) - Healthy as anybody score

Score of how true or false surveyee perceived the statement: I am as healthy as anybody I know, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08510 36-item Short Form Health Survey (SF-36) - Health limited walking several blocks score

Score of surveyee-reported limited walking several blocks due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10970 Manual muscle testing date and time

Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 26 - 50 of 1842

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.