CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1089-C04802	C04802	Death date and time	Date (and time, if known) of participant's death	Supplemental	Death Report	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1089-C04800	C04800	Death cause text	Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate	Supplemental	Death Report	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1089-C21665	C21665	Death cause ICD-10-CM code	ICD-10-CM code that describes the cause of participant's death	Supplemental	Death Report	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant, assigned at birth	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth	Supplemental	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Supplemental	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant most closely identifies with	Core	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant most closely identifies with	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C00022	C00022	Ethnicity USA maternal category	Ethnicity the participant's mother most closely identifies with	Supplemental	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C00033	C00033	Race USA maternal category	Race(s) the participant's mother most closely identifies with	Supplemental	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C00032	C00032	Race USA paternal category	Race(s) the participant's father most closely identifies with	Supplemental	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C00021	C00021	Ethnicity USA paternal category	Ethnicity the participant's father most closely identifies with	Supplemental	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12331	C12331	Respiratory manual cough assist session time	The duration of manual cough assist use per session	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C17402	C17402	Site name	The name of the site for the study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C15572	C15572	Imaging diffusion direction count	Count of diffusion directions in the associated diffusion imaging study	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1090-C18253	C18253	Clinical trial previous participation indicator	Indicator of whether the participant/subject participated in any prior clinical trials	Core	Medical History of NMD	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1018-C10852	C10852	Grip strength test performed date and time	Date (and time, if applicable and known) that grip strength testing was done	Exploratory	Grip Strength	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1020-C10867	C10867	Dynamometry hand held muscle test performed anatomic site	The type of muscle tested using hand held dynamometry	Supplemental	Hand Held Dynamometry	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1016-C10972	C10972	Manual muscle testing position type	The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C17795	C17795	Imaging diffusion third b value	Value, in square millimeters per second, of the third b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.