CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1106
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental-Highly Recommended Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Supplemental Fat Aspirate Tissue Specimens Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's medical history

Supplemental Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

Supplemental Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

Exploratory Grip Strength Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10724 Echocardiogram perform date and time

Date (and time, if applicable and known) the echocardiography was performed

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04501 ECG assessment date and time

Date (and time, if applicable and known) the electrocardiogram (ECG/EKG) was administered

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10865 Dynamometry hand held muscle test performed date

Date (and time, if applicable and known) the hand held dynamometry was performed on the participant/subject

Supplemental Hand Held Dynamometry Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10873 Holter exam start date and time

Date (and time, if applicable and known) the Holter examination began

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12916 Cardiovascular Holter exam stop date time

Date (and time, if applicable and known) the Holter examination stopped

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10970 Manual muscle testing date and time

Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Supplemental Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Core Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11098 Pulmonary function test date and time

Date (and time, if applicable and known) the pulmonary function test was performed

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Supplemental Vital Signs Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12379 Respiratory negative pressure device initiation date

Date of initiation of non-invasive, negative pressure

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12375 Respiratory positive pressure device initiation date

Date of initiation of the non-invasive, positive pressure device

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12381 Respiratory tracheostomy date

Date of the participant's/subject's tracheostomy

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 76 - 100 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.